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How Many People Have Discovered Through Therapy That They Have PTS Due To Unhealed Epilepsy Issues From Adolescent Years?

A MyEpilepsyTeam Member asked a question πŸ’­
London, UK

Hi everyone hope you're all as well as can be πŸ’œ
I decided to start some CBT to help with my anxieties and fears taking different brands of Leveteracetam as I have been given 4 different brands in 3 months which have all had different side affects but I wasnt sure if some of the side affects were actually real or psychosometic πŸ€”
My therapist has been great. I have realised that I tend to ruminate in what ifs buts and maybes due to past experiences taking Epilim and how that medication really was… read more

June 16, 2023
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A MyEpilepsyTeam Member

Kelly, your question is such an awakening for me personally along with Kathryn's reply. Due to childhood physical abuse by my father (not sexually) all of my teens and many years thereafter, I had a horrible feeling of worthlessness. When seizures appeared, this condition heavily increased causing me to make decisions (nothing illegal of sort !) that I would never have made previously, nor ever again. We can't erase the past, and after 30 years I am still struggling with the the results these poor decisions. Bottom line at least for me, epilepsy can affect proper decisions in one's life that can never be erased. It's a sad way for me to look at it, but I take the attitude.....having no expectations results in no disappointments. It seems I may have had PTSD at some point. I wish you and others in this communication the best. Roy Anthony

June 17, 2023
A MyEpilepsyTeam Member

Omg, I'm so afraid to go to therapy. I've spent the last 20 years. Dealing with epilepsy. My struggles have improved. Therapy? Then I spend along time Dealing with those problems.? Should I go?

June 17, 2023
A MyEpilepsyTeam Member

I had therapy when my seizures were out of control. In a boarding school. I was asked to leave. My parents went there! I felt ashamed. Talking to someone other than my parents really helped. I decided I was intelligent w/ this therapist. No one can limit you do to fear. I found confidence needed help. I volunteered in Police work. Loved it ! My doctor said you have empathy, work in this work! You would be great! It’s true!

June 16, 2023
A MyEpilepsyTeam Member

Yes I have done some CBT over the years. In large part dealing with Levetiracetam & Briviact side effects (Im still dealing with the consequences of the stupid stuff I did in seizures the relationships & money I burned the jobs I lost). Almost equal in my emotional / mind to epilepsy itself. I will be frank, Levetiracetam & Briviact seemed to amplify traumas (of all sorts) & now that Ive come off the stuff I feel less traumatised & am happy to pack away in a box my grievances. little tunes would go around in my mind and likewise excessive ruminations I think this is a Levetiracetam & Briviact effect. I feel back in control of my emotions and ruminating having stopped & to not need CBT. Its a real gap in treatment that neurologists dont have psychologists on hand with some expertise in the area. Ive been sent to neuropsychiatrists, neuropsychologists but never a talk therapist with knowledge of the sphere! CBT is one part , but a bit of a life coach/ navigating disability advice (or whatever you call it... Illness) is another part I never quite found in a single therapist. (or even one where its was understood that my traumas & emotional issues had a lot to do with high dose racetams) .Maybe in the internet era this gap will be better plugged & serviced. But thats great you've found a good therapist Kelly! good luck with it xx

June 16, 2023 (edited)
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A MyEpilepsyTeam Member

i have uncontrolled kid seizures from a combo of kindergarden boosters vax and my undienosed until it was too late celaic disease (gut problem) at birth. i have pts and ptsd from all the trauma from the many meds (i am med resistent), the many seizures per day (before surgery when i was a teen), treatments and unorthodox treatments, alternative meds, and i have poked and prodded trying to find the cause. i had tharapy but it was op/pt/speech tharapy (arms/legs/speech).
as for the meds... generic keppra has different manufactors. therefore different amounts of chemicals to make keppra. your body will effect you in different ways depending on with rx store and manufator you have.

October 9, 2023
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