No. My Nuero is pretty good. We do most of our appointments over the phone. My choice. He will deal with any issues pretty quickly.

Yes @A MyEpilepsyTeam Member I have seen an Epilepsy Nurse. I only saw Epilepsy Nurses in my stay at the hospital and/or when my Neurologist is out of town.

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A MyEpile...

Yes. I have one and I don’t see her very often. In my appointment with her, my neurologist and doctor will be there too. I only see them around 4 times a year. You can change nurses if you’re not keen on them. I did when my epilepsy nurse didn’t even believe me or know what to do in certain seizure situations. An ESN just helps around discussing what medications should be used if your current one isn’t working fully or something.

i never had to deal with a nurse for my epilepsy.... but what was interesting was that my nurologist where i live shared more than my old one where i grew up.... plus my epilepsy seizures have not occurred as much presently

@A MyEpilepsyTeam Member This was one of the reasons the Neuro wanted me to see the Nurse practitioner I think. It's mainly due to my condition changing and he's trying to find better ways to treat it. Plus it means I'm now going to the Neruo clinic anyway so the ESN just has to make a phone call and he can arrange a group appointment. So it works out better I think. They already operate in groups this is just a better version of the treatment I already get.

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