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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Has Deep Brain Stimulation?

A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL

I’m thinking about getting it.

August 2, 2023
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A MyEpilepsyTeam Member

RNS System You can do an EEG then send it to the doctor via laptop. The downside of this is that seizures begin at one place, not at different locations then You can’t use RNS System but You can use the DBS System.

August 7, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
A deep brain stimulation is a surgery where they place wires in your brain

August 6, 2023
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A MyEpilepsyTeam Member

EvgeniaLunina, You say your battery is low but you just got the device this past Dec 2022? That is strange? That is when I got mine and mine is nearly full charge. I'd ask your surgeon or neurologist about this. Something is wrong with this. I'm sorry about that.

August 4, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, hello and thanks for the input.

Previously, my professor suggested VNS, as it was more commonly used with epilepsy but as I don't have any auras, it would be useless for me.
And you are right it's the power box or the generator that's about to die. The surgeon reduced the amplitude from 9v to 3v hoping it would last a bit longer. Unfortunately, he has no access to something he can replace it with: nobody expected this can happen so quickly.

In any case, I wish you the best of health and I hope DBS works well for you.

August 11, 2023
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A MyEpilepsyTeam Member

I had a stereo eeg and then my brain surgery

August 3, 2023
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Many Or Most Of Us, Know About The VNS An RNS . Has Anyone Ever Heard Of The Deep Brain Stimulation Or DBS?

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Hewitt, MN

His Awaiting An Appointment For Vagal Nerve Procedure Has Anyone Had It Done And Does It Work

A MyEpilepsyTeam Member asked a question 💭
Galway, IE

Edema

A MyEpilepsyTeam Member asked a question 💭
Sioux Falls, SD
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