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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do You Feel Uncomfortable Telling People You Have Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
September 11, 2023
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A MyEpilepsyTeam Member

I used to keep it to myself at the beginning because it was super controlled, didn’t think it necessary. People who knew would treat me like I was fragile, thus excluding me from certain social activities. So I did not feel comfortable sharing.

Depression, because of epilepsy and meds, made me isolate myself, because I did not want to burden my friends with my problems or my mental state. I came to realise that I was hurting my friends, they didn’t know why I was acting distant/aloof or ghosted them for months on end.
Later I started opening up… the good ones understand… but the GREAT ones are there for you and support you. You’d be surprised who turns out to be what kind of friend.

Now I’m very comfortable sharing, even with non-friends, like telling people “I had a seizure yesterday, so apologies if I seam a bit out of it” - I’m not looking for sympathy, I just want them to understand my actions and me as a person.

September 14, 2023 (edited)
A MyEpilepsyTeam Member

Yes I feel very comfortable telling people I had seizures and if people can't except me for the person I am then they don't need to be around me that includes family members to you should not have to hide that you have seizures from nobody in this world if nobody wants to be around o well at least you know you will always have one true friend and that's the good Lord ok

September 14, 2023 (edited)
A MyEpilepsyTeam Member

No problems at all. After 40 years.it is a part of me like an are or a leg. Most people are nosy about my Medic Alert bracelet so we have the conversation.

September 12, 2023
A MyEpilepsyTeam Member

Epilepsy has been part of the majority of my life. I had no trouble talking about my Epilepsy. Especially, when I was being interviewed by an employer.

September 11, 2023
A MyEpilepsyTeam Member

No! God gave them to me for a reason! Still very blessed!

September 14, 2023

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