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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Would You Describe How It Feels After You Wake Up From A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Denver, CO

I’m putting some info together to understand this better. The more descriptive, the better! Thank you.

September 25, 2023
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A MyEpilepsyTeam Member

I have no idea, unless someone has witnessed me having a full seizure because they are always followed by a complex partial seizure. The only time that I know that I have had a seizure is if it was a simple partial seizure or someone witnessed one of the other types of seizures and tells me about it. It has been decades since I had a full seizure and woke up on the floor. And my complex partial seizures just continue to mutate. And I only have auras before simple partial seizures that happen while I am awake. I have no idea if I have any aura before the nocturnal seizures. On the bright side, I have been in a long-term seizure free state for a year and 5 months with even the worst level of anxiety and depression (during the last 2 years) not breaking that seizure-free state so far.

September 26, 2023
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A MyEpilepsyTeam Member

Unknown Many times I don't I had a seizure unless things are moved to odd places or slight nip on my tongue.

September 25, 2023
A MyEpilepsyTeam Member

I had two questions running through my brain: where am I and what did I just do. Right away I realized where I was and then I kept quiet waiting for someone to tell me what they saw. Then I was usually embarrassed or surprised I was still alive.

September 25, 2023
A MyEpilepsyTeam Member

Well when I wake up from the seizure for around 5 minute I believe I'm dreaming and that none of this is happening, and eventually I remember and I'm like...Oh crap!
But the worst thing is when someone who doesn't know what is happening calls an ambulance and I have to fight with the paramedics telling them I'll be fine. Nothing is worse than having to spend a week in a hospital after a seizure, it only worsens the depression, it's not like if I spend my time there I'll get better, at least in my case I know I'll only get one seizure not a cluster so there is no reason for hospital.

September 25, 2023 (edited)
A MyEpilepsyTeam Member

dad lookin all goofy. i have to ask what happened, all bummed up....

December 16, 2023

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