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Who Has A VNS?
What type of seizures do you have and how much of a success has it been for you? I have a VNS for 16 years. Within the first month of treatment it cut my seizure activity in half. I have complex partial seizures and it has been a blessing for me to have. I used to have 10-12 seizures in a day lasting 10 minutes or so and now I am only having 10-15 a year now. It's been replaced three times and I currently have model #106. With the auto stim feature turned on.
I also have complex partials, i only have auras. I can have anywhere between 101 auras(last october) and 30ish per month. 0-10 a day. Ive recently started having absent seizures also like i did when i was little, but either way i got my VNS in 2019, ive only started having the absents in the last 3 months. I tried to use the magnet several times and it didnt work, so we just turned it up to the highest setting and were allowing it to hopefully help on its own, sending the periodic shocks.
The procedure costs money to remove also, with my medicaid at least, so thats why we left mine in.
The monitor needs to be adjusted like meds are to get better effects. My VNS was adjusted 3 times before I experienced the benefits. Good luck..
@A MyEpilepsyTeam Member
I once had a VNS but it didn’t show a slight difference in my seizures so I had another surgery and got it removed
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