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Said Effect And Medication

A MyEpilepsyTeam Member asked a question 💭
Bulgaria

1 After a seizure, can you get up and continue your usual work?
2. Has anyone had any side effects from epilepsy medication?

October 22, 2023
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A MyEpilepsyTeam Member

Everyone reacts differently with their seizures and medications.

Seizures: Every one’s seizures are different . There are mild moderate and sever seizures, all depending on the type of seizures he/she maybe having. Many may experience 2 to all 3 different frequency type seizures.
Then, there is the question on, how long the seizure (s) last.

All of these, will configure how you will respond, after the seizure. You may get knocked out ( Fall asleep ) into the next day, from an exhausting seizure(s). Having trouble not able to literally speak. May slurr nonsense or trouble ,remembering the words you want to say, May even stutter while talking. Then there those of us, who may come out of the seizure angry, crying or some form of emotion. There are the many of us ,who don’t recover from the seizures for many hours to so many days. Then there are people like myself who may recover within the hour after the seizures.

Medication: there are so many different side effects with medications. Many of them have similar side effects along with different ones. What one person may experience with a particular AED medication, another person may experience something different in side effects. Someone may experience a bad form of side effect from a certain AED brand . The other person, on the same AED medication, may experience mild side effects.

October 23, 2023 (edited)
A MyEpilepsyTeam Member

Yes, I can continue my normal schedule. For example, I awake up in an emergency bed. I ask can I go home, they said someone should pick me up. I told them my brother is waiting outside. I took the bus home.

The first medication they put on topomax (. I do not remember how to spell it or whatever). I just did not feel right, good thing I was not taking my medication. In the beginning I had a hard remembering or avoiding taking my medication.

October 27, 2023
A MyEpilepsyTeam Member

Keppra (Levetiracetam) doesn’t give Me any anger.

October 22, 2023
A MyEpilepsyTeam Member

When I had my first grand mail seizure it was 1979 and I had just started college. I was 18 years old. A funny little story I’m able to tell now but at the time I was scared to death “I was with a couple friends getting ready to go to dinner and I remember stopping at their room and I had an aura. t that time I had been having auras for years but I had no idea what they were and my mom told me I just thought to much. Lol. But after walking down the hallway I fell to the floor and had my first grand mal seizure. At that moment when I became aware there was a man standing over me. It took a moment but I knew I recognized him. He was the fire chief of the town where I was attending college. I felt safe. Weeks later I was thinking and I thought about it. I needed to tell him something. When I saw him at a fireman’s banquet for the fire department my father was the chief at I told him at the moment I saw him I wasn’t sure what job he was doing at that time was he saving me as a fireman or was embalming me as the local funeral director. We got many laughs out of that for years.

But back to medications. I was first put on Phenobarbital and it totally screwed up my body and mind. I don’t remember having problems of this degree with any other meds just problems trying to find the right combination. I am on Lamictal for mood right now but it also a seizure med so even if I still was having auras it covers it. I’m am on Topamax also because I have started having Essential Tremors. Lol go figure. Swap one disorder for another.

November 7, 2023
A MyEpilepsyTeam Member

Audrey, I was diagnosed at 7 when a teacher thought I was deliberately not paying attention to her. My mother remembered my saying "Mommy, where am I ?" at 3. I was small and in an Incubator for a month. I am now 71. Do you know your triggers? I have no auras, so have to avoid them. If they are minor seizures (30 seconds or so) I can get back to what I was doing. A bad one means I need to urinate badly (stress), and can be very confused. I may not know where I am either.

October 28, 2023

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