VNS Hurt And Sz’s Occurring!
Called office the afternoon the VNS was increased in morning. That afternoon had flurry of seizures!
They wanted me in ER if it doesn’t stop! Brother!
That happened to me before, but it had been my fault due to crossing area more then once. I made mistake crossing area implant was made more than once and learned that's why. I was only to cross once.
I hope this is resolved and that you'll feel safe again Toni!
That happened to me before..
My neurologist changed a setting and I didn't even make it out of the building and had to go back to the office and he did another adjustment.
It is rather concerning that we have a VNS and not many healthcare professionals know how to Deal with or adjust them.
I wish you well
I can feel my VNS working sometimes also. I sleep on my left side and trying to train myself to sleep on my right side instead. Sometimes it will wake me up with a buzzing sound. The times that I actually feel it are when I'm sitting still and not doing anything to keep my mind busy. My epileptologist said that this is normal
I first had the VNS device placed in 2008 then have been working with a wonderful group of medical professionals and medical staff that know the device. The current epileptologist I have is wonderful as he does exactly what is needed for the VNS. With the epileptologist and medical staff taking care of this VNS device, I am in very good hands. The medical university I visit for medical care receives high ratings every year for treating epilepsy patients, so I trust them and wouldn't go anywhere else.
When my VNS displayed a pain level for the first time, it raised an eyebrow to the point that I called the neurological office and asked what was going on. If it continues, I was asked to contact them again as I might need to make changes. According to what I was told, a VNS can cause a "bite" which can go away, but if it persists, it can be troublesome and be a cause for concern for a return visit. In my case, that "bite" happened once, then it never happened again. I kept a log of dates and activity to keep my epileptologist informed of all new VNS updates as well as any other activity.
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