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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are There Any Friends Who Have Endured The Challenges Of Being An Epileptic Single Parent To Young Children With No Local Support System?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

A new friend of mine on here (Dawn) shared this part of her story with me and is looking for help from those of you who know: "Hi i am raising my son 2 kids and i can't handle them because of my Epilepsy i get confused on what i want to do.and i really don't tired of being stress."

Please give her some advice!

November 19, 2023
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A MyEpilepsyTeam Member

I was on my own with my daughter for a few years. She was about 8 years old and had some issues of her own, but I talked to her about my seizures and what effects they have on me. I told her I would always do my very best, but I need a little help sometimes--remind me of things, make lists for me, give me a quiet no-drama day if I say it's needed. She felt like she had an important job and she felt needed, so she was very eager and happy to help when she could. I did eventually reach out to a teacher of hers from time to time, and through that lady I was able to find some resources. It's OK to expect your kids to step up a little bit--responsibility helps them grow. It's OK to ask for help. (If you never ask the answer is always "no".) People are much kinder than the media would have you believe.

January 16
A MyEpilepsyTeam Member

My children were in their 30s when I was diagnosed with Temporal Lobe Epilepsy. I had to teach my grandchildren how to respond with my siezure disorder. Keep safe zones for Gram! If you find something that looks like candy, don't eat it, give it to your parents. Gram drops medicine! Let Josie do her job and alert your parents! Now that grandchildren are teenagers they journal for me! I started having all family members do siezure drills! Afterwards we pray together and I will sleep! Take care of Josie Girl and bring her back to me, we will sleep together a lot!
The more information you can give others...friends drivers neighbors...the safer you will be. I am thankful to be granmal siezure free since January 2019. THANK GOD for ALL HIS MANY BLESSINGS! I pray consistently with FAITH TRUST STRENGTH HOPE JOY LAUGHTER HAPPINESS AND LOVE ALWAYS LOVE!
Trust GOD
Be Kind
Follow JESUS
🙏🏻✌️🌎 💞👣🐾🐾❤️☝️

November 20, 2023
A MyEpilepsyTeam Member

Hi I had epilepsy when I was a child until I was a teenager
25 years later I had a massive grand mal and my daughter was 4 fortunately my brother was there and my parents helped in any which way they could
Most of the time I was fine bringing her up but would take advantage of having a few hours sleep while she was a school over time my seizures got progressively worse and I can't go back to work now
But we got through it even though it was very difficult at times
She's 26 now and is working as a head chef
So it can be achieved even though it difficult and sometimes even felt impossible I can't stress enough that it's important that you can have family or friends to fall back on when are bad as long as you remain the main person in their life good luck and I wish you well

November 22, 2023
A MyEpilepsyTeam Member

A nanny or family who can provide you with some help in the house or even friends or parents of the child’s friends who could help out by simply picking the child up from school and maybe giving you some time off during seizure periods would help.
It would be good if these people lived in the nieghborhood. That way your children weren’t gone far from you. You could put these numbers on the refrigerator or somewhere visibly accessible to the kids and should you need help they know who to call.
Establishing a regular routine is essential for those of us with epilepsy. My daughter was 15 when I was officially diagnosed and she’d known if something happened to me to call her grandmother after she called911 and then to go upstairs to my nieghbors house and stay until my mom came for her. The most important part is teaching your children to keep a cool head and remind them there is always someone they can count on .

November 22, 2023
A MyEpilepsyTeam Member

All my children were very young wife and I couldn't have succeeded without family I can't imagine raising family on your own.

November 19, 2023

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