Thanks for the hug, Sean

I wish I could answer your question.
I don't know anything about VNS.
I know about nocturnal seizures because I have had those.
They suck.
My nueroligist has put me on Keppra, toprimate and aptiom to see me thru this horrible nightmarish experience.
I wish I could have more information about VNS for you. But I assure you, you will be in my prayers. --Judith

My mom I think wants me off of allow these so she can say she doesn't have a daughter that has been labeled with the stigma. At least that is the way she acts around me. It is extremely hurtful to watch. I don't know what to do. It sickens me. My sister says I need to enjoy her while she's around because she is 88 years old. I try to tell my sister that we can go at any minute. We are not on our time but on God's.
She gets irritated and says that I should be more understanding of mama. But mama needs to be more understanding of me and my seizures-- even if they are PNES. And she refuses to believe they actually are seizures.

I once had a VNS. It didn’t show any improvements so I had another surgery getting it removed.

My first VNS was implanted 2015 then the VNS was recalled so I had another VNS placed 2018 and is working OK, I have had it 6 years this coming summer...
The battery is 25-50% left..
With the combination of medications and the device I have not had a gran Mal seizure in at least 4 years.
I have had small episodes but nothing like they used to be.

Hello Tracy,
My VNS battery is running low so my neurologist has me going to Morgantown to get it replaced-the one I’m getting “catches” seizures in sleep and u no longer have to wear the device on wrist(magnet)
At this time I have had a few more seizures than normal but I know it’s because it needs replaced.
Personally with my VNS I have never had issues with misfiring