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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Vns Therapy

A MyEpilepsyTeam Member asked a question 💭
Midland, MI

i want to know as much as possiable about it they r talking about doin this on my daughter

June 17, 2015
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A MyEpilepsyTeam Member

I have it and it works I was one of the first people to get it I have had it for more than 20 years now

September 30, 2023
A MyEpilepsyTeam Member

I had my battery 🔋 replaced and it works perfectly.

February 2
A MyEpilepsyTeam Member

I had my VNS 2001, replaced battery 4 times. It works fine!

November 9, 2023
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A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one that has been created, so I will be getting that one in the future. Good Luck in the future, I hope Your VNS continues to work when You use it, sound’s like You have a very positive attitude. Best of luck to You.

January 20, 2023
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A MyEpilepsyTeam Member

I was diagnosed with partial seizures and nocturnal gran mal seizures (they would start when I was asleep) when I was 11. I tried dozens of meds and nothing worked. Brain surgery wasn't an option because of the location the seizures were coming from. I had the VNS implant when I was 15. I am 33 and I have not had a seizure since. I still have partial seizures (tremors in my right hand) but those are mild with the VNS and medication (Keppra and Lamictal)

I have had the battery replaced twice (every 5-7 years) and it is a quick outpatient procedure. The first surgery is more invasive, though, assuming they still do it the same way. They will make an incision in her neck to connect the implant to her vagus nerve, but they do not make an incision on the neck when they replace the battery. She may have side effects at first, like her voice sounding different or coughing when the implants goes off. I remember the first time they turned it on I sounded like I was underwater, but it only happened that one time.

I am very happy that we decided to go with the VNS therapy. I would probably still have grand mal seizures if I didn't.

January 18, 2023
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