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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For People Who Have VNS And/or RNS

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

So I have a VNS and RNS...both don't help anyone have similarities

April 15
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A MyEpilepsyTeam Member

You’re welcome.
It was originally use for Parkinson’s Disease. The DBS did get approval from the FDA until 2018, to use for Epilepsy. Its Fairly new for the Epilepsy Community.

April 15
A MyEpilepsyTeam Member

Never heard of the DBS I'm going to look it up thank you

April 15
A MyEpilepsyTeam Member

Wow! I can’t generalize these few comments but it doesn’t look like the VNS is very helpful and I used to hear the opposite. I know everyone is different and hope whom ever you are, and whatever device, medication/s therapy any of you are getting/using that it helps. Here’s a beautiful spot near our University of Pittsburgh’s campus I go to relax and enjoy the view. I’m fortunate enough to live 1.5 miles from here and to have gone to Pitt to earn my college degrees.

April 23
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A MyEpilepsyTeam Member

The VNS didn’t work well for me . Never experienced the RNS . But 2022 I had the DBS put in. . That has worked well for me and has reduced my seizures.

April 16
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A MyEpilepsyTeam Member

I see a side effect can be seizures and want them to go away

April 16
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