Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have You Ever Seen Video Of Yourself Having A Seizure Or Would You Prefer To Not See Yourself Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Hesperia, CA
January 26
•
View reactions
A MyEpilepsyTeam Member

Even though I haven't had a seizure in years, I think it would be good to let the doctor know what is going on when I have a seizure.

March 2
A MyEpilepsyTeam Member

No. Happy Birthday.

January 27
A MyEpilepsyTeam Member

That kind of thing is something only a neurologist or epileptologist should be looking at in my opinion. I honestly wouldn't wish to see something like that as it is too stressful for me to look at and it is a risk of myself going into a seizure. I prefer my medical specialist to take care of viewing the videos as I know he is the best person for the job.

January 26
A MyEpilepsyTeam Member

My husband tries to get my seizures on camera phone by my request. I don't remember my seizures or feel them before or after. The first time I saw one, I was shocked by how I came out of it and went right back to talking like a tape recorder. It also helps my doctor tremendously. So that what my husband does, try to get my seizures on video.

January 26
A MyEpilepsyTeam Member

Multiple times

January 26

Related content

View All

Has Anyone Else Been Told During Absence Seizure You've Been Talking To Yourself?

A MyEpilepsyTeam Member asked a question 💭
Chorley, UK

Has Anyone Here Started Tapering Down/off AEDs 4-5 Days Ahead Of VEEG?

A MyEpilepsyTeam Member asked a question 💭
Anchorage, AK

Visual Symptoms Or Verbal Symptoms?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in