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Does Anyone Have Bradycardia (dip In Heart Rate) Before A Seizure?
Is your son by any chance anemic? Or dehydrated? I’ve been anemic all my life off and on, but last few episodes of bradycardia revealed very anemic. Just a thought/
Who Has Taken/is Taking Sabril (Vigabatrin)? I Know The Side Effects, But Am Just About To Start It, And Would Like To Hear Your Stories.
I got taken off this due to the side effects - if anybody needs to know in the future what this can do, do not hesitate to contact me.
Anybody Here From Perth And Would Like To Meet Up Or Even Just Chat? With This Weather I'm Not Able To Go Out As Much And Getting Bored :)
Yes Aus is beautiful, I am very lucky that I have had the chance to travel the country and it is a wonderful place. Just had lot of rain here in Perth in the last week which makes it harder for me to… read more
Epidiolex Has Anyone On This Forum Received And Tried Epidiolex CBD Oil ? Want To Hear About Your Expreince With It
I tried it once it last for about 7 to 8 months then my mouth started to get a nasty taste in my mouth every time I tuck it. I told my MD about it I stopped talking.
My 6 Month Old Just Got Prescribed Keppra. Do You Know Of Any Safer Alternatives?
I'm scared her personality will change and of side effects. I'm searching for safer and more holistic alternatives. Doctors are really giving us zero answers and are diagnosing epilepsy due to 2 days of seizing. Any information is much appreciated!
Multi Focal Seizures
My initial diagnosis was abscence seizures (which I've had for 10 years, 2 which were hallucinatory, and also 2 grand mals), but recent events has led to an alteration to multi focal.
I am meeting with the neurological team tomorrow, so this is the perfect chance to throw them every question I have in their direction about this change.
I've already written several down, but anyone else who has multi focal seizures have any suggestions?
Very good question. An intracranial EEG performed prior to right frontal temporal lobe surgery in Nov 2019 determined my brain is bilateral, so I would say that focal onset has progressed to bilateral… read more
Do Others Find Themselves Doing This Also? That Is, When Coming Out Of A Seizure, In The Fridge Eating Something. Or Is That Just Me?
I know I'm not hungry, I've probably not long had dinner half the time. But for some reason I go back to the things I haven't eaten all day, like chocolate.
I’ve Just Started Taking Briviact - Anyone Have Anything Positive To Say About It ?
I Finally Got My Dates For My DBS Surgery - That Is Feb 4th And Feb 18th. Can Those Who Have Had The Surgery Tell Me Their Recovery Time?
After I had my DBS put in , I felt comfortably healed in 8 or 9 months. I was able to brush my hair , without being cautious and careful , trying not to open any of the scars.
Does Anyone Have An Opinion About Cannabis Oil For Epilepsy?
No. I do not. I do give CBD to my dog for her bad, arthritic hips. She was getting a point of not walking even outside to potty. I was messaging her and giving her treats with bone supplements. But… read more
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