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Can Anyone Tell Me What To Do When Your Mate Thinks They Know Everything About Your Seizures And You Know They Are Changing?

A MyEpilepsyTeam Member asked a question 💭
MCCORMICK, SC

My husband thinks he knows everything about my seizures. He is tired of them. He doesn't realize how tired I am. Before the seizures I had a sweat program after the abuse I suffered from my father. It scares me sometimes when I get nervous and think it might be back. I have finally found a deodorant that works but I still sweat when I am upset or in crowds. Just not as bad. I am afraid of body odor. How do I get him to understand that sometimes I don't remember repeating myself… read more

February 25
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A MyEpilepsyTeam Member

I believe everyone that has a family member with epilepsy should have a support group of their own. To learn what you're going through and how to help you through it. As well as share his concerns.

February 25
A MyEpilepsyTeam Member

The other day I told my wife to come on this website and look around all day. Find out how many people here have the same problems I do.

February 25
A MyEpilepsyTeam Member

does he attend any appointments with you? and also what Irene asked. The more informed he is the more understanding and patience he might have. Sometimes hearing it from the health care practitioners help. He may also need his own support so he can express his fears and concerns for you

February 25
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Your local Epilepsy Foundation might have a Caretaker/Parent Support Group & you could try & encourage him to go to that with you & listen & ask any questions. They might offer it virtually like by Zoom or in person. If you can’t persuade him to go then you might contact your local Epilepsy Foundation for suggestions on how to handle things. Prayers things get better. Your friend in Texas, Becky

February 25
A MyEpilepsyTeam Member

Cheryl, my heart goes out to you and I'm sorry you're going through this. Does your husband participate in any epilepsy support groups?

February 25

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