It Seems After Reading A Few Posts On Here I Am Not The Only Person With Epilepsy Who Finds That Their Family Doesn't Want To Know Them!
A lot of of this is based on Fear. Some is also, not wanting to understand Epilepsy.
These people who don’t want to understand or care , have no clue, that they too can possibly get diagnosed with Epilepsy too. Going from an normal life to a hard challenging life. Everything they took for granted is gone. They would have to find an alternative way to live their life.
We just cannot let our family and friends depend on our personality and who we are and what we have to live everyday.
I had surgery twice for sz! I married afterwards, have wonderful husband and 2 ground children 😊🥰
My husband knew what he was getting into, he saw me have my worst seizure. Nowadays he does get frustrated when it takes a beat to catch up mentally. And he does get frustrated when I can't remember things. That is why I carry a date book everywhere now. @A MyEpilepsyTeam Member - I understand your comment and agree with everything you said. I was at a church potluck and was talking about my epilepsy, because who doesn't like a good epilepsy story? A woman came up to me crying afterward and I realized I had done it this time. She was crying because her son had epilepsy and she had never heard anyone talk about having epilepsy. I almost started crying myself.
Randy, You said what I was going to say. LOL
Should I Have To Apologize?
Relationships And Epilepsy
Does Your Family Ever Act Like Or Make You Feel Like Having Seizures Isn't A Big Deal