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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Your Family Ever Act Like Or Make You Feel Like Having Seizures Isn't A Big Deal

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX
October 23
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A MyEpilepsyTeam Member

No, my grandmother, father and his siblings had childhood seizures. They taught me how to detect and learn my triggers

October 26
A MyEpilepsyTeam Member

Sometimes people pretend things aren't a big deal... because they're scared or sometimes uninformed.
Maybe someone you know... knows that epilepsy really isn't just "that big"... It's even "BIGGER!!!" So they just stay quiet thinking it's better for you .. just not to talk about it.
Someone reacting in this sort of behavior can also mean that someone loves and cares about you.
Epilepsy is rough on everyone it touches. Those who physically have it... and those family and friends who live with someone who has it. We all feel it!
Wouldn't it be easier to just "pretend" everything is ok and epilepsy doesn't exist " at the end of the day!?!"... but what good does that do?!?
We need to keep people informed (including us); it keeps everyone and us safe(maybe even alive)! If everyone has the knowledge... there's no reason to be scared... no reason to pretend epilepsy isn't important!
Take Care

October 24
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I get the same reaction from the hubs. Worried, with a bit of angry mixed in.

October 29
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
You got that right. Epilepsy is not just seizures. It affects us in so many ways from life to memory. It does no good to “Pretend” epilepsy isn’t important because I’ve lived with it for over 30 years and it has had control of my whole life. And like you said it has put a lot of pressure on my parents taking care of doctor appointments and watching me grow up with seizures.

October 24
A MyEpilepsyTeam Member

My mom and dad really didn’t treat my seizures as anything special, but then again they never treated any of my illnesses seriously. My hubs on the other hand goes overboard.

October 23

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