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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If Let's Say Everyone Or Most Of The World Knew More Of The Condition We Have, Would It Make A Little Bit More Dif As How They See Us, More

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I am wondering if it would, nothing against anyone else but I think it might just a better understanding of what we have to live with in our life y, I know that other people have other illnesses and diseases and such etc, but I try to understand what they try and let me know about it, if they decide to let me in on the situation they are going through, I try to put myself in their shoes and see it how they put it to me, I am a not a doc, but I think that it does make a dif, If you are somewhat… read more

6 days ago
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A MyEpilepsyTeam Member

If the world understood Epilepsy better , there wouldn’t be a large Stigma surrounding it.

Every path and decisions we make in our lives wont be so stressing..
People would have better knowledge and understanding of Epilepsy. We will be taught from K - 12 about Epilepsy in Health classes .There will be less fear of Epilepsy. The reduce of ignorances , would be lessen than it is today.
We may be treated better in the working world. Hopefully, the many of us will be better treated by our parents and siblings . Plus many other things , could have made adapting and living with Epilepsy better.

5 days ago
A MyEpilepsyTeam Member

Thanks for asking in my opinion, knowing more about each other would make the world so much of a better place and with our complicated situations the more people that know what we deal with and how we deal with it I feel like the better the world could be educate, neighbors, friends, family, neologist, and doctors are learning so in my humble opinion, the more we all know the better off we all are please keep up your great efforts

6 days ago
A MyEpilepsyTeam Member

I generally choose not to divulge my epilepsy. That is US and CA law. I am not required to. On the other hand, I think most people have compassion if they do not know then it isn't fair to expect them to know the life a tonic colonic epileptic lives.

2 days ago
A MyEpilepsyTeam Member

Good point Randy, who ever heard of epilepsy before? Like in bios of all the famous their epilepsy is just left out. Said to scare others or make think of insanity. Some medics are more aware now, one told me is part of training now. Modern day view of epilepsy is to treat it as the medical prob it is. People talk about epilepsy like here & sites like FB now. Social stigmas are getting erased slowly but surely.

5 days ago
A MyEpilepsyTeam Member

It may help to some degree, but even if they're made aware of epilepsy, they still won't know what it's like unless they have it.
My brother & his wife are MD's but they won't except or try to believe whay I go through personally & socially/ at work. His wife doesn't even try. Even my old neurologist admitted he couldn't fully understand what I was going through

5 days ago

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