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Is Dilantin Used By Many In This Community? I Know It Is One Of The Older Medications Out There. What Is Your Experience Using It?

A MyEpilepsyTeam Member asked a question 💭
Cleveland, OH
March 28
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New Epilepsy Meds: How Long Does It Take To Adjust? Read Article...
A MyEpilepsyTeam Member

Dilantin was like a security blanket. I took it for over 30 years. I saw a lot of changes to other meds but Dilantin stayed with me. I even asked after my surgery to make Dilantin the last med I would stop taking.

There were a couple of drawbacks. My gums would swell and I lost half of my teeth. It eventually caused a Vitamin D deficiency. But it made me feel like I was getting the best control I could ask for.

March 29
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A MyEpilepsyTeam Member

Lesley,
I lace been on this for 40 years and it has worked great as medication to stop seizures. It is the memory issues that bother me most. I have learned from all of you that memory issues are common with many anti-epileptic meds. It is still something I have struggled to accept. Good health to you and hopefully many seizure free days ahead.

March 29
A MyEpilepsyTeam Member

If I remember right, I was taken off it , because it was ruining my mouth Gums

March 29
A MyEpilepsyTeam Member

I've been on Phenytoin for over 35 years. It's the only medication that has worked and I've tried 9 with it.

March 29
A MyEpilepsyTeam Member

I was taken off of Dilantin because the neurologist said it is harsh medication and is hard on the teeth.

May 20

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