he had 4 seizures over approx 5 years and 5 in the last year or so. so i suppose he hasnt had many but not gr8 having so many tonic clonics recently. its early days yet trying to sort meds. eeg showed right frontal lobe activity.

Well how sure are you it in his temple lobe may I ask and yeah Working out what meds and dosages he needs are a very difficult thing and so how often does he have fits then and like I said try and find out if it In the temple lobe because it getting removed can help a lot and sometimes they can’t be to tell you because my old neurologist just used to charge my pills every time I sore him but then I said to him I want to see a different neurologist and she has helped me with my epilepsy more In five years then he did In six years of seeing him so I’m saying take control ask the doctor questions don’t just listen to what they have to say because the more you learn and hear the better it is for you and your son

hi Christopher, am from Ireland. neuro hasnt mentioned any procedures to us. he has a normal brain mri so am not sure if they could locate the focal part?? think we are still finding our way with meds for the moment.

So I got diagnosed with epilepsy back in 2011 but mine is my whole brain epilepsy but with your son I think they could get rid of it completely because I know what I’m about to say is scary and worrying but you can live with out your frontal lobe as you can have a surgery that can take it out and should be able to take the epilepsy with it just like when you leave the house you take your Kay’s with ya and then he should not have to worry about taking medications forever but I’m only 70% percent sure on that so give it a bit of a look at too. To see if what I was saying was right and I’m doing okay I go see my neurologist every 3 months and I have this thing in my left part of my chest called a VNS what sends a electrical pulse to my brain that helps counteract my brain from having a fit and I have to say it has helped me out a lot since I got it put in four years ago but the only down side you have to get them changed out ever 4-5 years or so as they run off a long life battery but they are amazing but my last fit was the 28/3/2024 so let’s see how long I last with out one this time and so tell me where are you from then

He had his first seizure in 2018, then the second in 2020

and was diagnosed then. Frontal lobe epilepsy. All his seizures to date (9 in total) have been nocturnal tonic clonics. As you say hard to deal with. His neuro has upped his zebinix (aptiom) so hopefully this will work in combination with the keppra. How are you doing and when were you diagnosed?