Thank you for your input.

@A MyEpilepsyTeam Member can you tell me how long the surgery was, what was recovery like, how long were you in the hospital and how long were you off work?

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A MyEpile...

@A MyEpilepsyTeam Member , Reach out to @A MyEpilepsyTeam Member , he has the RNS. Your friend in Texas, Becky

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A MyEpile...

A MyEpile...

@A MyEpilepsyTeam Member
I was in the hospital for about a week when I had the RNS surgery. I couldn’t tell you how many hours I was out. I wasn’t able to work or lift anything heavy for about 10 or 11 weeks. The recovery was kind of painful. It hurt to even lay my head down on a pillow so I got one of those neck pillows. I laid the scar over the open hole so it didn’t put pressure on the womb. I wish you luck.

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A MyEpile...

@Ibrokenshire
I have had the RNS system for about 5 years. Before I got it I had so many EEG’s, including a surgical one, where I didn’t have any big seizures so they were a waste. The RNS not only helps reduce seizures but it also records your brain information everyday. Whenever I have a seizure or aura someone touches my head with a magnet and that marks that spot important. Before I go to bed, every night, I turn on the RNS and place a wand on my head. It will take a minute or two for it to download any seizure information. When it’s finished downloading I hit “Send” and all of the information goes to my doctors. When I go see my neurologist and RNS squad they get out a monitor and can see everywhere I had a seizure or aura and everywhere we used the magnet. Most of the lines are level but when they go to a spot I had a seizure the lines get bouncy ———wwwww——-. They write down whatever information. Since I still have some seizures the doctors have risen the power many times. To do that they just place a wand on my head and make some adjustments on their computer. I never feel anything. I do still have seizures but I think they’ve decreased. I only have 1 or 2 seizures per month but if you have more seizures you’ll probably see a bigger decrease. So I’m happy I go the RNS.