When I had the VNS , I experienced coughing when the device send the electric pulse and for a few of the starting months I would get like a shock feeling in the throat , when the electric pulse went off. Sometimes I would struggle talking .

In 2022 I had the DBS put in. I never noticed any side effects from it compared to the VNS.

@A MyEpilepsyTeam Member
I have had a NeuroPace-Neurostimulator (RNS) for 4 or 5 years. I had so many EEG’s, including a surgical one, where I didn’t have any seizures so they were a waste. The RNS not only helps control your seizures but it also records your brain activity while you are having a seizure. Whenever I have a seizure my mom will touch my head with a magnet. That will mark the spot important so my doctors can take a closer look at it. Before I go to bed, every night, I turn on the RNS monitor and place a wand on my head. It will just take a minute to download any seizure activity. When it’s complete I hit “Send” and all of the information goes to my doctors. When I go see my doctors they get out their monitor and can see everywhere I had a seizure and everywhere the magnet was used. Most of the lines are smooth but when they go to a spot I had a seizure the lines get bouncy
———wwwwww——. The doctors write down any important information. Since I do still have some seizures the doctors have risen the amps multiple times. To do that they just place a wand on my head and do some adjusting on their monitor. I never feel anything. I have always been one to have 1 or 2 seizures per month. Ever since I got the RNS I’ve seen more 1 seizure months so it’s almost like it cut my seizures in half. If you have more seizures you’ll probably see a bigger difference. If there’s anything I forgot just ask.

Mentioned Users

A MyEpile...