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Since I Am Not The One Having The Actual Seizures I’m Curious To Know What You All Feel And See During Yours I Only Imagine

A MyEpilepsyTeam Member asked a question 💭
Albuquerque, NM

Like flashing lights or darkness is it equivalent to like having surgery without you actually knowing what is going on .. my son can’t tell me so maybe you all could clue me in please is their pain are your emotions all over the place my son can’t tell me cuz of his autism too

April 26 (edited)
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A MyEpilepsyTeam Member

A seizure is like a short circuit of brain activity that screws up senses our speech, movement. Not painful but high emotions from rush of hormones to brain so extremely scary. Once brain get back on track all returns to normal.In past times not nuff was known bout brain to explain or control epilepsy but now we do. Hard to explain cause its like a dream for any so of course Son can't for you. Yet despite all the autism etc he still loves you & an important part of your life. Most is what any need is comfort & love to help deal with seizures. I know its out of love that you want to learn more which is beautiful. Had a child w/o limbs little brain activity so died. Just be there after seizures for best comfort -as you said needs even more from autism so still like a child. That was my own reason for getting upset at pics to show him.Must be awful to not know why but just be glad you have him. I hope things can calm down for both of you.

April 26
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member yes I have had his 31 years of experience with it just watching him go through the different stages and varieties of them all I’m not scared I just feel bad that I can’t figure out a way to stop them for him 😔

April 27
A MyEpilepsyTeam Member

Stay calm for your son and be by his side during and after the seizure. Being comforted is essential. I have focal seizures but get no warning. It's like an electrical impulse going through my brain and right arm. I have to shake my hand to stop it. They are tiring but happen often.

April 27
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A MyEpilepsyTeam Member

Since we are all different with different types of Epilepsy and different Seizures, we all may have similar and differential experiences.

With myself I never know when I seizure. I would go into a seizure , come out and continue on, what I was doing before the seizure. The only way I know of having a seizure, is when my family or friends tell me. I’ve had times where I would bicker with my family in disagreement , of having the seizure(s) . Although deep down, I know they are right.

April 26
A MyEpilepsyTeam Member

That's when the pain comes in. You feel nothing during the seizure, in fact, I'm told that I'm freakishly strong. It's after when my jaw was sideways under my ear. Or herniating your desk from falling, chipping your tooth from falling out of bed, the way your whole body just aches like you’ve been hit by a bus. You know, the list goes on.

April 26
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