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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Having Our Own Conditions, Do You Plan On Doing Something You Felt Like Trying Out But Are Unsure Of Doing And Are Going To Try It Anyway?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

They say you shouldn't do this or that because of the condition we have but decided to go for it. How do you know until you try it out, I heard the saying that talk is cheap, but I think it's dif per person and how do you know until you try, I understand the. Advice and recommendations, but are they you and are you going to try something out you wanted to but all of the info you got is playing a so called head game with your thinking, what do you think about this ❓,

May 7
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A MyEpilepsyTeam Member

I think I would do it depending how risky it would be to not only my epileptic action. If it's 1st. time be careful of how actions of fear or excitement would be on 1st time. Also a few other times after 1st just to be extra careful.

May 7
A MyEpilepsyTeam Member

I tried pickle ball! I love it and laugh a lot! I have falling sz and my friends did you bring band aids. Clean up and ready to have more fun!

May 19
A MyEpilepsyTeam Member

I don't think you should listen to others that don't know what you have been through. You can do things, don't try to hard to let others tell you you can't do something

May 8
A MyEpilepsyTeam Member

Quite agree with not limiting self for fear of a seizure. Enjoy doing what you like w/o this worry preventing you. My only restriction is not driving other than that if a seizure occurs no big deal. Just keep in mind it will pass to help deal with. Relax mind bout all the what-ifs just focus on your own type for best life despite epilepsy.

May 8
A MyEpilepsyTeam Member

I've done things when younger since had epilepsy, enjoyed then. Wouldn't now since have got older. 1 thing though that didn't take chance, my brother in law spoke of how I ought to go white water rafting with him and sis. Never did, considering I would of liked but was scared to try in case

May 7

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