I know you don’t want to have to travel, but if it’s to see the best doctor, it’s worth it. I saw epileptologists Drs. Ting, Tirol and Motamedi at George Washington University Medical Center. Not only are they epileptologists, but when I was in the EMU, I saw them all. No matter which doctor you see, they are all a team and all look after you. I think it is worth the trip. They helped me so much. They listen and take their time with you! Also, if you can, I always take someone to the doctor with me in case I forget what happened or just need a partner to let me know I’ve got support.

In my personal experience, any time, any where I have seen an epileptologist (or even their PA or nurse practitioner), it has been a night and day experience compared to seeing a regular neurologist. They not only know more, but they take their time. Their knowledge and willingness to listen really gives me confidence in them.

@A MyEpilepsyTeam Member
I have had a Neuropace (RNS) for 4 or 5 years. Before I had the RNS I had so many EEG’s, including a surgical one, where I didn’t end up having any big seizures so they were a waste. The RNS not only helps control your seizures but it also records your brain activity when you have a seizure. Whenever I have a seizure or aura my mom will touch my head with a magnet. That will mark that spot important so it stands out to my doctors. If I don’t have the magnet on hand, it’s no big deal, the doctors ask me to use it whenever I get home. Before I go to bed every night I will turn on the RNS monitor and place a wand on my head. It will take a minute or two for it to download any seizure information. When it’s finished downloading I hit “Send” and all of the information goes to my doctors. When I go see my doctors they get out their monitor and can see everywhere I had a seizure and everywhere the magnet was used. Most of the lines on the screen are smooth but when they go to a spot I had a seizure the lines get bouncy ——-wwwww——. They write down any important information. Since I still have some seizures the doctors have risen the power multiple times. To do that they just place a wand on my head and do some adjusting on their computer. Every 7 years or so the battery will need replaced. That wasn’t a very big procedure. Actually, it was an outpatient procedure so I got to go home the same day.

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May want to get a old of your local Epilepsy Foundation. They may know of an Epileptologist or Neurologist nearest you.