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Do You Ever Wonder Why You Had To Be The One To Have Epilepsy Or In My Case I Always Ask That About My Son Who Has It ..

A MyEpilepsyTeam Member asked a question 💭
Albuquerque, NM

It’s really stressful and depressing to watch him struggle with this

May 11
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A MyEpilepsyTeam Member

Yes I do think about this a lot. I think about why I’m the only one in my family with epilepsy and wonder if I did something bad to deserve this but I have to try and remember that it’s not my fault. Im not a bad person and just try to help as many people as possible.

May 11
A MyEpilepsyTeam Member

I can't say I know how hard it is to watch but I think it may be helpful looking at it the way I do. That way is yes it a negative problem but if it wasn't this could it be harder. I know if I didn' come down with Epilepsy when I was 15yrs old I could be in jail, a severe drug addiction, or dead from multiple actions. When I was younger I hung around with the bad ass cool kids. After coming down with Epilepsy that embarrassed me to stop hanging with them . Now mostly all my old time cool kids are dead, living an extremely addiction too drug life or dead from something I may have been involved in if not coming down with epilepsy. Also, if didn't getting brain surgery removing 13% of my right temporal lobe I'd be still be alive for everyone except me to live. This being from a hitting of a car putting me in a coma with bleeding of the brain. Thanks to coming down with Epilepsy needing brain surgery the blood had some where to go. Was unable to apply pressure on my brain. If did apply that pressure on the brain, yes I would be still breathing and have a pulse for everyone else to see , but not me because I'd still be in that coma with a bunch of IVs hooked in me still having seazures. Which problem would you think I'd rather have to deal with or have others who care like too see me be in be in. One of those or problems of epilepsy. Which I know can be in many different ways. Same as it is with anything, it can always be better but it also could be much worst in many different ways. You take care and wish you the best

May 11
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A MyEpilepsyTeam Member

I do think about why I am the only one in my family with this condition I have a lot of my mother's gens. She had Lupus which has seizures so I more than likely have seizures because she had them when she was very sick with her Lupus.

May 13
A MyEpilepsyTeam Member

My epilepsy started at the age of 16 with puberty and exams, ie stress. I accepted it at the age of 17 thanks to the great mother I had who supported me in all ways and gave me the courage and strength to live with it.

May 13 (edited)
A MyEpilepsyTeam Member

I used to ask myself that all the time. One of my brothers had it and grew out of it in 2 years. The other never had it. So why me? Why am I the one that it stuck with? I stopped asking myself years ago. It doesn't do me any good. I had to move on from that for my own good.

May 11

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