@A MyEpilepsyTeam Member, my dr is the one that brought it to my attention!!! Trust me to let my dr know, I've been on all seizure meds past 17yrs except 4 due to side effects so I know to let my dr if I experience anything different.
My appetite has decreased dr knows that, just says if snack during day and 1 meal day try that. However, still notice effects. Dr and I worry as I still have seizures and thinking increase dosage but worries about.my quality of life,as.it.as greatly diminished. Dr rather do increase than change meds as there is only 4 left to try. So afraid what if I have worse side effects with those, not many other meds to try. So, rather deal with weight loss than any other side effects I've experienced with many other seizure meds.

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A MyEpile...

Yes, I have. I've experienced a loss of appetite and weight. I'm in the hospital right now because my electrolytes are out of sync from mot eating or drinking enough water.

@A MyEpilepsyTeam Member , I’m glad your doctor noticed your weight loss. I’ve read on this site that when some had trouble with medications helping to control their seizures, they looked into surgery & many different team members on here have had different surgeries, like @A MyEpilepsyTeam Member has the RNS & it reduced his seizures a little but he still has a few but before that he got the VNS but it didn’t help him much & so he had it removed & got the RNS. But the different types of surgeries works different for everyone. A few have on here have also had the deep brain surgery. Just keep visiting with your doctor about the options available. I hope things get better for you. Sending Thoughts, Hugs & Prayers. Your friend in Texas, Becky

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A MyEpile...

A MyEpile...

@A MyEpilepsyTeam Member , The first thing to do is to let your doctor know what’s going on. They can’t help you if you don’t tell them. They will give it thought & decide the best way to handle it. Several years ago I had to get off my Topamax because it made me loose to much weight. Good luck. Your friend in Texas, Becky

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A MyEpile...

@A MyEpilepsyTeam Member
12 , I was a medication (Zonagran ? ), that I was on and it made me loose weight .
I went in for my check up with my Epileptologist .and I had some weight loss. I think my Dr. got worried . He took me off it and put me on a different med.

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A MyEpile...