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For Folks Who Use Mycophenolate For Autoimmune Epilepsy...
I was diagnosed with this type of epilepsy earlier in the year. Since my main doctor doesn't know what to do, he brought in an autoimmune consultant. Hasn't been ideal to work with, but the current situation is took me 3 messages in order to get him to look at my blood draw results he ordered and I told him what dose I am taking and the side effects and acts like this is a huge surprise to him. He's known since May. He wants me at 2K mg twice a day and even 500mg makes me so sick I finally… read more
@A MyEpilepsyTeam Member what do your doctors say? I'm worried they will no longer sign off on the DMV forms that it is okay for me to drive after 4 months because I'm "not following the treatment"
Good Afternoon, We Know Our Body & Reactions Over These Doctors Who Assume They Know It. What Works For Someone In Your Condition, Isn't Guaranteed To Work For Others. I Stopped 250 Vimpat, Am & Afternoon 12/2023 On My Own Because I Finally Felt After Several Yrs It Was A Waste. I No Longer Have 5-6 Seizures A Month. My Last Seizure Was 7/2023. I'm Still Fully Satisfied With My Evening Meds. Stay Strong & Keep Your Head Up. Good Luck 💜💜💜
Who Uses Rituxan?
When Dating Someone New How Soon Should I Inform Them Of My Epilepsy?
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