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How Do You Handle Relationships With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Mesa, AZ

Awhile back I was in a pretty tough relationship where the individual wasn’t too accepting of the fact that I had epilepsy. They actually would say I was broken and made me feel pretty bad about it. Honestly this was the most toxic relationship I’ve been in. This his was actually my last relationship I have had and since then I’ve been pretty closed off honestly I can’t deny it has a lot to do with it. My question is have any of you received judgment for it? And if so what would you do in these… read more

August 5
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A MyEpilepsyTeam Member

I make it clear that this is my situation from day one and let them know if they can't deal with that they can leave right now! I've had people not want to be involved with me because of my medical issues many times and my entire friend group actually ditched me when I was first diagnosed with epilepsy. Not a chance in hell that I'm gonna put up with people like that so I just prefer to put it out there ASAP. My first date with my boyfriend I explained everything to him and told him if he could not accept that and support me then too bad for him and he should get out now!! We've been together for a year and a half now :) . anyone who can't accept you for how you are should not be in your life. It's all about finding the right people!!

August 6
A MyEpilepsyTeam Member

People who criticize, discriminate, Harass us, are not true friends . Although , with family members, we are just stuck with.

Anyone that are ignorant, either don’t want to understand or have a fear of Epilepsy to a certain extent .

Breaking off the relationship is the best thing to do. I pray and hope you do find the right person

August 5 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I SO agree with you. When I started dating or even meeting people that I would hang out with I would let them know face up, I've got epilepsy as at that time my seizures were so off when they came around half of the time they were complex partials that would take me for a loop then I'd want to just chill out for an hour or so afterward. I had a small group of people who either had family members with epilepsy or took the time to do research and were able to get some understanding of what it's all about. The small group that stuck around liked me for who I was and didn't run away which was good to know someone was there to support me.

When I was younger, I went to girl scouts, got into counselling others. When I had become an adult I actually started helping out 4-H by building up a small group in the rural area I was in and helping the kids learn something. Now that I have gotten older, I take the time to support others that I see are in need. I have multiple skills that I can offer so I like to share those skills with others so they can grow and build their dreams.

I believe a person can do what ever he or she desires to do for success in life. They should NEVER EVER be treated physically, emotionally, or mentally different. That is abuse and it is JUST WRONG.

My thoughts and prayers are with everyone for strength. 🧡

August 8
A MyEpilepsyTeam Member

Hi GabeRamirez! I will say this with regard to relationships...if someone cannot accept you and support you through bad times--be it seizures or any other problems--they are not deserving of you. If this individual tried to shame you and make you feel broken, they were the one with the problem! It took awhile for me to meet my husband, but he is wonderful. He is very protective--sometimes too much! He went to Cleveland Clinic with me, and stayed in the room. He drove me to work this morning because the weather from hurricane is coming up through Virginia. Weird weather can make me more prone to auras. Don't let your experience with one person scare you away from having a relationship with someone. You deserve love just as much as anyone else!

August 8
A MyEpilepsyTeam Member

Wow guys I can’t believe I would get these replies. honestly some of you who went through things as well. But most importantly thank you for all of the advice. Randy you’re absolutely right sometimes it’s hard to hear it but I can’t deny it’s true, those kinds of people are not true friends. The relationship did end and since then I’ve been just trying to work on my health and well being. To Dave I think that is a huge inspiration! The way you handle having it is as if you’ve truly accepted it as part of you I think that’s where I’m struggling I suppose but know I understand and I know I can get there too! One thing is for certain I will stay positive! I see how strong you all are you’re all inspiring me to be more thank you all! This meant so much to me! And to Steph you shouldn’t have had to go through that. We all deserve to be treated with respect and well treated like anyone else. Again I really do thank all of you certainly was not expecting this tonight. You’re all absolutely right and I’ll be keeping my mind right. God bless you guys!

August 5

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