Thanks for this information. Did they shave your head in surgery? I might as well get the neck pillow. I have the surgery on Monday.

@A MyEpilepsyTeam Member
I have had the Neurostimulator (RNS) for 5 years. Before I had the RNS I had so many EEG’s, including a surgical one where I didn’t have any big seizures so they were a waste The RNS not only helps control your seizures but it also records your brain information while you have a seizure. Whenever I have an aura or a seizure my mom will touch my head with a magnet 🧲 and that will mark that spot important for my doctors. Before I go to bed every night I turn on the RNS monitor and place a wand on my head. It will just take a minute or two to download any seizure activity onto the monitor. When it is complete I hit “Send” and all of the information is sent to my doctors. When I go see my doctors they get out their computer and can see everywhere I had a seizure and everywhere we marked with the magnet. Most of the lines on the screen are smooth but when they go to a spot I had a seizure the lines get bouncy ——-wwww——. The doctors write down any information. Since I do still have some seizures the doctors have risen the amps multiple times. To do that they just place a wand on my head and do some adjusting on their computer. I never feel any vibrations or others things. Recovery wise I wasn’t allowed to lift anything for a a few months. When I lied on that side of my head it hurt so I got a neck pillow and lied to where the womb was over the hole. That took the pressure off. If there’s anything else you’d like to know just ask.

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@A MyEpilepsyTeam Member may be able to give you some information

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@A MyEpilepsyTeam Member
They shaved my head after I was put out so I didn’t know when they shaved it. I pray everything goes well for you.

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