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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hello All, Has Anyone Else Been On Tegretol For Almost 40 Years? I Feel I Must Have Some Horrible Long-term Side Effects By Now. R

A MyEpilepsyTeam Member asked a question 💭
London, UK
September 3
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A MyEpilepsyTeam Member

You should be getting blood tests anyway. There are other tests they do at certain stages but its really just a med thing not a Tegretol thing. Tbh if a issue was happening they should know about it. I had to come off it after 25 years partly due to it no longer working and I started having issues. But hey new about it very quickly because they were getting me to have monthly blood tests at the time.

September 3
A MyEpilepsyTeam Member

It's dif per person, maybe it's your body changing over the years, I would bring the? Up to your doc about and go from there, people's opinions here are ok here, but get a medical one, my opinion

September 3
A MyEpilepsyTeam Member

I was on Tegretol for 35 years, moved countries and was given it again. I had hyponatremia after a few months.

September 3
A MyEpilepsyTeam Member

I never had any side effects taking Tegretol

September 3

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