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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are There Any Parents Out There Living With Adult Children With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
East Falmouth, MA

What are YOUR challenges/experiences?

September 15
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A MyEpilepsyTeam Member

Yes, there are parents on MyEpilepsyTeam living with adult children who have epilepsy. They share about the ongoing challenges of worrying about their children's health and safety. Some parents help their adult children manage medications, transportation, or finances. Others offer emotional support and encouragement to help Show Full Answer

Yes, there are parents on MyEpilepsyTeam living with adult children who have epilepsy. They share about the ongoing challenges of worrying about their children's health and safety. Some parents help their adult children manage medications, transportation, or finances. Others offer emotional support and encouragement to help their children live independently. Tips parents on MyEpilepsyTeam share include: advocating for adult children when needed, helping them find trustworthy doctors, and connecting them with local epilepsy support groups. Focusing conversations on strengths and maintaining high expectations also helps.

September 15
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , You will find other parents on here, just keep your eyes open for their posts. Here is a list of parents. 1. With an adult child is @A MyEpilepsyTeam Member , 2. @A MyEpilepsyTeam Member has a child recently diagnosed with Epilepsy. 3. @A MyEpilepsyTeam Member has a teenager with Epilepsy & Autism., 4. New member @A MyEpilepsyTeam Member has a child with Epilepsy but I don’t know how old, 5. @A MyEpilepsyTeam Member is new to the site & has a child with Epilepsy whom I guessing is an adult. This can give you a list to start & I’ll see when I get some more time if I can find some more in my notifications thread but just bare with me because I don’t know when I’ll be able to get back to you. Maybe Monday night. Welcome to the site. Your friend in Texas, Becky

September 16 (edited)
A MyEpilepsyTeam Member

My mom has to take care of a lot of paperwork. She’s in charge of scheduling my appointments and driving me everywhere. I’m in my 40’s and have lived with them my whole life. I’ve had seizures for 30+ years.

September 16 (edited)

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