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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Shouldn’t Some Epileptics Go Alone To See The Doctor? I Didn’t Talk About The Side Effects From The Meds Because My Mother Was There.

A MyEpilepsyTeam Member asked a question 💭
Stockton, CA
September 17
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A MyEpilepsyTeam Member

I always bring my husband. He is my ride but also he helps me to remember things that I might not. He also asks questions that I may not think of. He is the only one that truly understands what is going on with me.

September 23
A MyEpilepsyTeam Member

I go alone. In the past, my husband recorded me when I was having a seizure. I don't have as many now. Next time I see my doctor I will talk to him about the side effects I am experiencing. My husband does not think it is the medication but me.

September 21
A MyEpilepsyTeam Member

I do my appointments by myself, I don’t have very many seizures maybe one a year.

September 19
A MyEpilepsyTeam Member

Oh I stopped going with my mommy…when I was 22 and I put my foot down. But her taking me while growing up really made things tougher. At ALL appointments, she CONVERSED MORE WITH THE DOCTOR than I did. I simply sat there smiling and nodding my head. I took my first pill, 100mg of Tegretol, when I was 12 years old, and the side effects hit me - like a sledgehammer. But while my mommy was sitting there staring at me I didn’t talk about the deep side effects, and that surely made high school and college so much tougher. Kinda funny. I guess. While in college I was driving a car, got the funny feeling and had a seizure when I was almost home. The first thing after that was opening my eyes in the hospital bed. And staring at the ceiling, I immediately told myself I’d never stop mommy from coming to the appointments.

September 18
A MyEpilepsyTeam Member

If you are aware of your seizures , can tell what meds have bad side effects you can’t tolerate and how well your meds are helping.Then you can probably talk to the doctor on your own.

Someone like myself, can’t tell when I seizure. But I am good at telling what meds are working and what meds aren’t . That includes the side effects. Whether they are mild or harsh side effects.

September 17

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