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Keppra?

A MyEpilepsyTeam Member asked a question 💭
Juneau, AK

Stigmatized, myth or fact

September 20
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A MyEpilepsyTeam Member

I was on 3000 mg a day for a while, but the fatigue, intensified depression, and inability to feel and express of my emotions became too intense and overwhelming. My doctor could see the symptoms, and finally took me off of it. But again, it does seem to work well for some people’s seizures, so I am by no means the only measure!!

The only thing we can do is try and see if it works. I wish you luck, and hope you stay as seizure safe as possible!!! K

September 21
A MyEpilepsyTeam Member

I did not tolerate the 4000/day Keppra. It crept up on me. I suffered through two months on it. Within 2 weeks my behavior drastically changed. The rage was real. I ended up hospitalized for self-harm ideation, and I turned hostile, aggressive and dangerously depressed. That neuro team never checked my blood levels and just added a full therapeutic dose of Dilantin. I became a non-functional wreck. I felt I was being mismanaged, so I fired that team and went with an epileptologist. He agreed that I was grossly overmedicated, weaned me off of the Keppra and Dilantin and started me on Lamictal. Keppra kept me seizure-free, but it was the most miserable medication I've ever taken. I was non-functional at that dose. I've been seizure-free on 500mg/day of Lamictal for more than 6 years. I'm convinced the high dose of Keppra was the cause because it all went away once I came off of it. While on it I was definitely circling the drain. I can't describe the feeling, but I eventually became totally apathetic. It was my wife that got me admitted. My son got the weapons out of the house... it was that obvious, and I couldn't bring myself to fight anything anymore. I showed all the classic symptoms of intolerance, but the dose was awfully high IMO.

September 21
A MyEpilepsyTeam Member

I take 500mg of Keppra

September 20
A MyEpilepsyTeam Member

I take 3000mg of keppra, or the lamatrogine. I do not get the so called rage. But I believe it exists for those who it must not work well for. Maybe because I take the generic med. But then I can get mad and have a temper. I'm married and have a kid. Find me a person who hasn't had a moment? And I think if someone has gotten to the point of the kind of rage that's described, then they should be seeing their doctor and being taken off that medication. Just an observation....

September 20
A MyEpilepsyTeam Member

There is still some stigma surrounding epilepsy, though it has lessened over time as more effective treatments have become available. However, epilepsy largely remains an "invisible" illness, with millions worldwide lacking access to medications. While the stigma has improved, discrimination still exists, especially in Show Full Answer

There is still some stigma surrounding epilepsy, though it has lessened over time as more effective treatments have become available. However, epilepsy largely remains an "invisible" illness, with millions worldwide lacking access to medications. While the stigma has improved, discrimination still exists, especially in developing countries where supernatural beliefs about seizures persist. The facts show that epilepsy impacts about 1% of adults in the US and 50 million people globally, making it one of the most common neurological disorders. So while the condition is not uncommon, stigma and misconceptions still exist.

September 20

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