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How Do Others With Photosensitive Epilepsy Deal With Flashing Lights When Out In The Public?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

Recently an outdoor restroom facility when up in my neighborhood and in each private stall are strobe lights. Now I used the restrooms without knowing this. I don't anymore because I afraid lights will go off when I am using the restoom and that would be a total nightmare. This makes me feel like I am discriminated against and where am I suppose to go to the bathroom?

September 24
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A MyEpilepsyTeam Member

Thanks for responding. Yes, these lights can be nasty! I just don’t understand why more laws can’t be made or changed to help people like us. There are laws that help others with disabilities, why not ones to help us? Like why can’t there be a law that any company that has vehicles or machinery that have strobe or flashing lights needs to make every empoyee who operates or drives them aware that there are people that can get a seizure from the flashing lights. This would make more people aware of photosensitive epilepsy, employees operating or driving these vehicles will be more alert to possibly encountering someone with photosensitive epilepsy and what they could maybe do to help.
I live in a residentual area; that is just a few blocks from places to eat and a lake where there is a trail people bike and walk around the lake. So, when I adventure out there are much more peope around. I love where I am living, but too many times I am forced to act like I am either possibly crazy or drunk. Because I have to do things to avoid looking at the flashing lights . Now I am not all that concerned what others think of me, but when it happens over and over again out in the public, it can wear down your self-esteem.

September 27
A MyEpilepsyTeam Member

To stay protected from photosensitive seizures they have glasses you can wear that have special lenses called polarized glasses or wear glasses that have a lite blue tint to the lenses. I was just over my pharmacy Rite Aid I saw they had polarized glasses for sale there. They look like sun glasses and have many different styles to choose from.
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September 25 (edited)
A MyEpilepsyTeam Member

My eyes are sensitive to bright lights. I wear glasses with Transition lens that really helps. I'd rather have my rooms dark and try to avoid flashing lights. bright lights and flashing lights are triggers for my seizures

September 25
A MyEpilepsyTeam Member

I don’t like bright lights. I practically live in the dark. Especially when someone turns on a light then turns it off. Drives my family crazy but I say I’m saving $ for the electric bill. They know I’m joking .

September 25
A MyEpilepsyTeam Member

Kris, even though you probably know that the people at the staff meeting didn't mean to hurt, insult or offend you. That probably didn't make you feel very good having to go to a darker room and be there all by yourself. I always bring my polarized sunglasses with me and have worn them at night in indoor settings before.

September 27

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