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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Had A Brain Tumor That Was Removed And Now I Have Seizures. I Would Have Twenty Or More A Month. I Have Burnt Myself Pretty Bad Three Time

A MyEpilepsyTeam Member asked a question 💭
Phoenix, AZ

The last time I spent over a week in hospital for skin graph. I really have no freedom to do as I please without someone with me. I get upset because I don't want to be checked on all the time. I know they care . I have seizures where I am like in a sleepwalk state and do things I don't know I'm doing and I have grand Mal's. I want my freedom back. I try to stay in good spirits and am always there to give a hand. There are times I want to scream to get this anger out that builds up from not… read more

October 1
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Bipolar Disorder and Epilepsy: What’s the Connection? Read Article...
A MyEpilepsyTeam Member

I feel your pain.
Everyday, every hour, every minute is a struggle just to stay vertical. Then there's the PTSD. The fear, the depression. The why me? The wish it would just end. The tears.
People don't understand.

October 2
A MyEpilepsyTeam Member

That's so true it feels like are body grew up but we didn't we can have a job but can't drive a car

October 2
A MyEpilepsyTeam Member

I know. It's been like that for 60 yrs. It makes you feel like your a kid too young to walk by yourself. Every natural function in the body says I'm grown up. But because of our condition we can't go for a walk or have to ask for permissI1ion from your child, when your older and your adult children become your guardians. Demoralizing and embarrassing. Sheryl

October 2
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’m the same way. I can’t take a walk by myself because in the past I was found laying on the side of a street having a seizure. The cops and fire department came to my rescue. My parents won’t let me do anything that would be a hazard if I had a seizure. I can’t go on walks, ride a bike, go swimming, use tools, climb heights, mow the grass. I’ve definitely had my share of injuries having seizures. So I can’t do any of the things I like either living with seizures. My parents know where I am 24/7. I used to have a VNS but now have an RNS. I just wish life would change for us.

October 1 (edited)
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