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I Had The RNS DEVICE SURGERY, July Of 2024. I’ve Had Epilepsy Since, I Was 4 Years Old . Is There Anyone Who Could Let Me Know How The RNS
I was diagnosed with epilepsy when I was very young. I took Dilantin and Phenobarbital , until I was 19. I was then put on tegretol and off Dilantin . Throughout my life I was put on many different seizure medications. None of the medications I took would even lesson my seizures. Throughout my life, I always took my pills and never stopped them. I got numerous EEG TESTS but, the information didn’t give my neurologists any new or different information concerning my seizures. After, my children… read more
@A MyEpilepsyTeam Member
I’ve had the RNS for 5 or 6 years. Just like you throughout my life, since I was a child, I was placed on every medication possible but had no luck. I had so many EEG’s including a surgical one where the doctors got no information. At least the RNS saves our seizures everyday for us to send the doctors. The doctors will also keep raising the power little by little so that might help. I think my seizures changed a little for the better part. I used to usually have 2 seizures per a month now I have more 1 seizure months. So as time goes on and doctors make adjustments I believe you will see a difference.
The RNS (responsive neurostimulation) device can be very helpful in reducing seizure frequency and severity over time. One study found it reduced seizures by 50% on average after 2 years, and by 66% after 7 years of use. It works by detecting abnormal activity in the brain and delivering small electrical pulses to stop Show Full Answer
I agree with you and your post here and the epilepsy team post and hang in there and try and stay pos
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