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? Since We Have Our Own Conditions And Such Etc, And Have Looked Up Online And Heard Of Somethings And Such We Can And Can't Do, More About

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I am wondering about this ❓ as I did not to long ago, I have brought this up I think another way here I think, but I was kinda surprised when I read about what you are suggested to do with the condition we have and do and not too, but this I think is a something I looked up and some of those I have done and it didn't effect on phase me and my condition I have, another? I kinda understand what they are saying but what about the ones that are not listed and you have done and it is not a prob with… read more

November 11
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member When I was young I had this really strang fear where somthing would happen at school then I thought I would die. Or I would hate going to sleep because I thought I wouldn't wake up I'm not sure why thats just the way it was. when the internet became alot more easy to access I would do the same. I was older so the fear stuff was all gone but I would just google random things but it would always stress me out.

I find now its just better to not use dr google and just bring up medical issues with the dr. The less I think about the better it is.

November 13
A MyEpilepsyTeam Member

It's understandable to feel surprised or confused when recommendations are made about activities to avoid with epilepsy. The lists of "dos and don'ts" can seem restrictive. However, many precautions are suggested because certain activities carry increased risks that could trigger seizures or cause injury during a seizure Show Full Answer

It's understandable to feel surprised or confused when recommendations are made about activities to avoid with epilepsy. The lists of "dos and don'ts" can seem restrictive. However, many precautions are suggested because certain activities carry increased risks that could trigger seizures or cause injury during a seizure. The important thing is listening to your own body and being aware of your personal seizure triggers. An activity that poses no problem for one person might be risky for another. It's wise to slowly introduce new activities while staying alert to your body's signals. Having a trusted friend with you for new activities can also help ensure safety. At the end of the day, finding a balance between caution and self-fulfillment is a personal journey. The members at MyEpilepsyTeam understand the frustrations and share support. Connecting with others who face similar challenges can help provide perspective.

November 11
A MyEpilepsyTeam Member

I know stairs are a big problem-or can be for some. Everything here has to be built on stilts because of permafrost, so u can’t get away from them. I’ve known ppl who’ve had all the corners of walls rounded so should they hit them there’s less chance of splitting their heads open as well. But most ppl here know about my condition and will try to make it so I don’t have to climb the stairs And with a couple other conditions I have, them coming down to meet me instead of me having to go up and down has been a Godsend. Some days I can barely get up my 10 steps let alone do 20-50 of them

November 12
A MyEpilepsyTeam Member

Well I know all through my childhood I was lucky not to have a seizure during all the sports I did. My transportation was my bike or my feet or the bus. My parents never drove me around.. There were literally thousands of times as a little kid all the way to when I moved out that I was just lucky. You name it I played it. As a teen I spent time at the pool those last 2 summers when we lived in the USA. Swimming and tennis took the place of my horse I lived on every free min. At least he moved to a nice American family and they were thrilled to get such a well trained horse who I shall always love and miss. When we bought that 2 story house when I was expecting my 3 baby I never thought about stairs being dangerous. I grow up in houses that had stairs going up and stairs going down into the basement. Which was always built by my dad or the previous owner den bedroom and bathroom. The rest was regular basement laundry, furance storage. People down south just don't understand what they're missing. All these houses are built on slabs but you couldn't have them here they'd fill with water every tropical storm hurricane and even the bad thunderstorms we get.

November 11
A MyEpilepsyTeam Member

What works for some, won’t necessarily work for others. I have smoked mmad - since b4 I was diagnosed and actually told to keep it up and don’t cut down, etc; and it’s been some of best suggestions I’ve been given- I stopped and my seizures increased significantly- I stopped for over a year and kept documenting what I had done that day, if I was slightly sleep deprived, if something happened that could be stressful etc, and when I started again I saw that on similar days and situations that were I had had a seizure while not using it I didn’t have one while using. And the same with meditation, breathing techniques and just plain relaxing. And while our list of do’s and don’ts is longer than ppl who don’t have epilepsy; I find most of them are pretty much common sense. If u know that u don’t always- or even do get auras b4 a seizure; it’s plain common sense that u should stay away from using power tools that could cause u harm such as saws and not going on ladders wielding, driving ( depending on how many, what type, etc - as per discussion with ur dr), using the stove afterwards and b4 if u think u might have an episode, showering, bathing, etc. All common sense. If it might cause u or others harm should u have an episode- don’t do it. I was able to drive for 20+ years b4 mine got worse; so that’s another factor. But I still am amazed at how many ppl will still chance driving or using the stove. I have to get home, to work, and the best one, pick up the kids!; get supper made, make bread- whatever ur chancing having a seizure and possibly killing ur kids or someone else, or burning down ur and others homes. So once again- common sense

November 11

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