Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is This Normal?

A MyEpilepsyTeam Member asked a question πŸ’­
Buffalo, NY

Hello everyone. I was diagnosed with epilepsy back in 2001 at the age of 16. Had my very first seizure on December 31. The neurologist said they were grand mal(tonic clinic). Since then, I've had more seizures. But here's the kicker. I was diagnosed with flashing lights as my trigger. But since my first seizure I have had seizures due to other factors, lack of sleep, stress, but not to strobe lights. I do NOT receive auras as to when they will come so I can prepare my safe place. My seizures can… read more

6 days ago
β€’
View reactions
A MyEpilepsyTeam Member

I've had epilepsy for 60 years. It will be stable for a while (whatever stable is at that time) then one day the frequency and intensity for no apparent reason changes. For me alot of triggers. As with all of us stress is the biggest one. According to a pharmacist I had, it can cause your meds to be less effective. Then of course many other triggers. My doctor started sending me for more in depth study because the seizures were happening every 3 weeks, over the course of 3 days, just having 2- 3 seizures a day. But now.... it suddenly appears to be calm. I thought to myself " finally. Thank goodness I'm finally going to get some help. Then it all but stopped. At least not frequent. Frustrated again.

3 days ago
A MyEpilepsyTeam Member

I've had my activity change on and off over the years .
It's kinda like getting an unexpected flu, broken ankle or back out of place
sometimes I know the reasons and sometimes I haven't the faintest

4 days ago
A MyEpilepsyTeam Member

It's not uncommon for people with epilepsy to experience seizures sporadically over many years. The unpredictability and variability you describe in terms of seizure triggers, frequency, and changes during pregnancy is fairly typical. Many find their epilepsy follows an unpredictable course, with long seizure-free periods Show Full Answer

It's not uncommon for people with epilepsy to experience seizures sporadically over many years. The unpredictability and variability you describe in terms of seizure triggers, frequency, and changes during pregnancy is fairly typical. Many find their epilepsy follows an unpredictable course, with long seizure-free periods mixed with clusters of seizures. The specifics of your case don't sound too unusual. Every person's epilepsy is different. The lack of consistent triggers and fluctuating frequency over decades can be perplexing, but is often seen. Having seizures mainly tied to specific life events rather than consistent triggers is fairly common.

6 days ago
A MyEpilepsyTeam Member

I agree with you and your post and the other people's posts here, I think it's dif per person, I have mine are more stable than before but they come about at random sometimes and I have nocturnal ones and grand mal once in a while, so it fluctuates with the individual I think and we may have the same condition but we all are different than the other person, and hang in there and try and stay pos, my opinion here

6 days ago

Related content

View All

Is It "normal" To Cry After A Seizure? Usually As I'm Coming Out Of The Seizure I Start Crying Uncontrollably. Is This Normal?

A MyEpilepsyTeam Member asked a question πŸ’­
Wausau, WI

Weird Feeling

A MyEpilepsyTeam Member asked a question πŸ’­
Kentucky

Is It Normal After Suffering This Condition, To Stutter, And Lose Track Of What I Am Saying? I Feel So Helpless

A MyEpilepsyTeam Member asked a question πŸ’­
New Brighton, PA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in