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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Studies

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

Has anyone ever tried to or participated in clinical trials? I tried to, but because I am allergic to an AED I did not qualify.

November 18, 2024
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A MyEpilepsyTeam Member

Only if it could cure me.

November 19, 2024
A MyEpilepsyTeam Member

I don't know what drug causes fatigue, or ringing in ears, I'm on 4 different AEDs. Insomnia is a big deal with me too,3 days at time usually. But I'll live with them instead of a Grand mal!

November 22, 2024
A MyEpilepsyTeam Member

Can't find one in my area. I would love to but not open to trying new drugs, Mine work just fine.

November 19, 2024
A MyEpilepsyTeam Member

Since I am medication resistant (can only take low dose) I don't get involved with research as there were many medications taken over the years to get me where I am today.

November 19, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
That’s how I’ve always felt too. I had a lot of EEGs, before I had an RNS, where I had no seizures. I always figured, how am I supposed to have a seizure when all I’m doing is laying in a bed.

November 22, 2024 (edited)
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