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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can I Request For Extended Monitoring If My Family Doesn't Believe Me I'm Still Having Seizures

A MyEpilepsyTeam Member asked a question 💭
Stanfield, NC
November 28
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A MyEpilepsyTeam Member

Most definitely!! No one but u knows exactly what ur feeling. They are only going by what they see. So if u feel like u still have epilepsy go back to ur dr and ask to be tested again or usually just explaining to them how, what and why ur feeling the symptoms that u are can be enough for them to decide if u still have epilepsy or something t. I hope u make an appointment soon and put everyone’s mind to rest especially urs. Hope u have a good day

November 28
A MyEpilepsyTeam Member

Yes, you can request extended monitoring from your doctor if your family does not believe your seizures are continuing. This type of monitoring, called an ambulatory EEG, records your brain activity for 24 hours to 3 days to try to capture seizure activity. Having family and friends who understand your epilepsy is Show Full Answer

Yes, you can request extended monitoring from your doctor if your family does not believe your seizures are continuing. This type of monitoring, called an ambulatory EEG, records your brain activity for 24 hours to 3 days to try to capture seizure activity. Having family and friends who understand your epilepsy is important. Consider sharing information with them about your condition and what to do if you have a seizure, so they can provide better support.

November 28
A MyEpilepsyTeam Member

U have to remember- it’s ur body and brain and ur the only one who knows if something isn’t right in how ur feeling. Nobody else can know how ur feeling, body, mind or soul as they used to say. They aren’t in ur body. So regardless of what anyone says; u have to fight for ur own health. If ur family doesn’t believe u so what. My mother didn’t believe me or others that she didn’t know as well as I did and it took a mutual friend watching me have a seizure at her place b4 my mother would take me to the dr ( it was just over a hour away and I didn’t drive yet so she had full control over me at the time), and when he found out why I hadn’t been there years before he yelled at her.
Good luck and have a great day

November 30

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