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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Your Doctor Or Specialist Discussed Threshold With You?

A MyEpilepsyTeam Member asked a question 💭
Spokane Valley, WA

I got lectured, again, about threshold at my Specialist appointment. Apparently, it's where I need work. Things in our lives lower our threshold to seizure activity. Too much exercise, not enough sleep, dehydration, others we hear all the time as triggers are actually things that are lowering our threshold. Not exactly a trigger, but just making us less able to fight off a seizure. Being sick is on that list, injuries, allergies. Maybe we need to make a Threshold lowering list. So what would you… read more

November 28
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Triggers are determined by where the seizures come from in other words what the epilepsy is. If you know that then it's not hard to narrow down.

November 29
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member This is part of the reason why they do blood tests. It's good to do your own monitoring but this can stress you out when things go wrong. If you get blood tests, then the dr can pick up on these issues for you.

November 29
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I do agree and disagree. It's important to know, but can be annoying to make the list. There are apps to help, if you want. Threshold would be making a note of how much sleep you had, water you drank, were you stressed or anxious. Stuff like that. Actual triggers are things like foods, smells, sounds, a bumpy car ride maybe, missed or different timing for meds, a new med of any kind including vitamins. Easy to list because you just need those when a seizure happens. Thresholds would be daily. So an app might be good. We should be monitoring stuff like water anyway since most of these meds effect our liver or kidneys.

November 29
A MyEpilepsyTeam Member

I try not to be worried about if or when I have seizures. That is Stress i can live without. If I watch my Triggers such as not getting enough sleep or eating well, I am well.

December 3
A MyEpilepsyTeam Member

I included it in my records as an allergy to stop the ER to give it to me. If there are others, they will tell me. There is an Epileptologist who works with her as well.

December 2

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