Quick Links
Resources
About MyEpilepsyTeam
Powered By
Do You Keep A Yearly Log Of Your Seizures Or Guess How Many You Have Had? And What Would That Be?
I do as for my doc appt give a estimate of how many I think I have had, and she doesn't mind and neither do I, as for how many I think that I have had since being diagnosed with my condition of epilepsy I think that is about 4175 and that's a guess, but off my head, I have asked this a little while ago, but what are your thoughts about this ❓
My husband keeps a list plus I send a message to my GP and Neuro via MyChart everytime I have a seizure.
I send a message to my doctors via MyChart. My husband keeps a list on a word document.
I have a seizure calandra that I report on . .i show it to my Epileptologist and my DBS researcher.
I was doing this when I was having known seizures and in the process of having testing for it. I've stopped doing it at the moment as I found that not everything, I was picking up turned out to be a seizure and a lot of it turned out to be minor symptom related events and, in the end, because I was so focused on the side issues, I would miss the seizure if one did happen. Going by the eeg tests.
These days I focus more on known auras & aura symptoms that are linked to my diagnoses and try to work out when they happen. When I focus on that its a lot less stressful.
Yes I keep one and update my doctor all the time. Just so my med records match
Glasses
How Do You Prove Your Ok
I've Been Having This Funny Feeling Going On In My Head All Day For Weeks Now Like Am Just Off Kneel And Not There.
Sign up for free!
Continue with Facebook
Sign up with your email
