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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does The Condition We Have Seem To Be A Different Person For The Condition We Have? Neutral One And Wondering?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I used to think like that at first when I was diagnosed with my condition and I felt like a outsider and such, but over the years with my condition I have I have accepted and outgrown that way of thinking I used to think, I don't feel like I'm any less or more than anyone else out in the world because of the condition I have had and live with, I know I have It and it's a part of me, but doesn't hold me back from being me and living with In my life with, before kinda of, but not no more, I'm… read more

December 10 (edited)
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A MyEpilepsyTeam Member

It's understandable to feel like an outsider or different when first diagnosed with epilepsy. Many members of the MyEpilepsyTeam community have felt this way before accepting their condition as part of themselves, not their whole identity. Focusing on self-care and finding peer support can help overcome negative Show Full Answer

It's understandable to feel like an outsider or different when first diagnosed with epilepsy. Many members of the MyEpilepsyTeam community have felt this way before accepting their condition as part of themselves, not their whole identity. Focusing on self-care and finding peer support can help overcome negative self-perceptions. Having epilepsy does not make anyone less of a person. While it may present challenges, members of the community find strength in authenticity - not hiding their condition, but embracing their whole selves. Comparisons with others are rarely helpful. Each person's path is unique.

December 10
A MyEpilepsyTeam Member

Thanks for the hug.

December 11
A MyEpilepsyTeam Member

When I was a toddler 2-4 years of age I felt like any other kid . I played a lot , rode my big wheel and did other thing a kid that age would do.

It was until I start going to school , when I started to feel like an outsider.

December 10
A MyEpilepsyTeam Member

I was always somewhat of a "loner". I really didn't think any different of myself. took some time to accept the diagnosis, once I accepted it my life became routine again just in a different way.

December 10
A MyEpilepsyTeam Member

Ppl are scared of what they don’t understand and don’t care to understand. I’ve never felt more or less of myself due to having epilepsy. I lived my life as anyone else who didn’t have epilepsy and I was fine with that until it was the cause of being put on permanent disability. Sure I had to make sure that whenever I went there wasn’t too many or anything that I knew would trigger my seizures but so do ppl who have other conditions. My way of thinking has and will always be that they are always ppl out there that have it worse off than myself so why should I be any different?

December 10

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