Babygirl68, Good eveng I have full intention tell my general practitioner in a couple of weeks that I want an MRI done. I’m noticing now walking just on foot has me getting worn out and winded . Ya I know you told me you’d hate for me to be wheelchair Bound but the more I think about it I think it’ll help me a great deal . I’m greatful for your generosity. I can tell you really care on what I’m going through on a daily basis now. I’m at the point right now wishing I had a wheelchair just to keep me in on a daily basis right now. Experiencing.this fatigue is exhausting for me along with the weakness in my legs as well. I’m having to spend to much time on my couch when I’m home I need my freedom back. I think Sammy knows too that something is up with me as well. The little guy keeps me company when I’m home, but yeah, his little face shows that he knows. Somethings up. Hope you have a good weekend this weekend and stay seizure free this weekend.

Good Morning Babygirl, Glad to hear you got to spend some time with your daughter. Yesterday I was off all day so i kept myself comfortable all day by staying in my pjs and robe all day. No I haven’t had a chance to tell my Dr what I’m going through. I go to my family doctor next month but don’t go to my neurologist til June. I’ve already told my neurologist what I’m experiencing and about the only thing I got back from him was it had nothing to do with my prescriptions. I also told him I had no problem getting around with a mobility device if I had to . Referring to a wheelchair mostly, his response to that was he didn’t think needed that. The whole time reading his response I’m thinking what good are you? My neurologist hasn’t been a lot of help to me so far. I get better results from my gp. This morning I’m experiencing a burning sensation all down my spine into my legs. This is exhausting.most of the time for me. Truthfully I probably could be a full time wheelchair user with all of this. I know it would definitely get rid on what I’m going through with me in a sitting position. I’m mostly comfortable in a sitting position than standing trying to get around on foot now. Babygirl thank you so much you’re generosity . I can very much that you feel for what I’m going through day in to day out. I plan on requesting handicap parking window pass plus plate when I see my gp next month. I feel like I need it now.

BabyGirl8, Yes I know I’m a mess. I feel it too everyday. You’re such a sweetheart. Like always it’s always travel travel on the holidays for my family. Christmas even I was
exhausted by the time we got home. My body is letting me do very little anymore and I’m feeling it more and more each day. Other than that it was OK. Hope you had a good one.. Luckily I’m off today and don’t have to go in tonight. I do feel weak in my legs when in on my feet to long. I feel it more and more as a week go by. I have all idea what ever I’m feeling in my spine is causing it. From what I’m reading. It’s either spinal sclerosis or MS starting on me. If you can only imagine the fear I keep having because of that. Both of those if it’s one of the two can cause paralysis plus all the symptoms I keep getting as well. Plus, it kills me some days when I tried to be on my feet and it’s too painful.

@A MyEpilepsyTeam Member, It’s taking me awhile to get me going this morning like usual. Like I mentioned in my last message to you with the constant symptoms I keep experiencing that haven’t subsided as of yet for me. Let me give you a timeline here……… Starting back in 2013 symptoms started showing in both of my hands of redness . I was only 37 of age not quite 38 but almost. By 2014 I was starting to show signs of what was seeing from the previous year my hands was now showing on my feet still not knowing what was working on me at the time so bye early 2015 my previous general practitioner had decided to send me to a rheumatologist to
get a diagnosis of what was and is working on me. June of that year I finally get a diagnosis. But by then it’s spread more in my body. By 2018 I start feeling it more in my spine. It’s already spread not I only into the lumbar area but now in the thoracic. Last year I want to say I start experiencing painful discomfort in the back of my neck. I my neurologist office did an X-ray on my neck last July it comes back clear, so needless to say I still don’t have any answers from anyone. The symptoms are still there and I’m still stuck on my couch do to having no choice but to sit up with my legs straight out. I’ve noticed a couple of times on my right side only that my right foot falls asleep if I’m sitting up and not stretch out on my couch. The burning sensation get intense if only I’m sitting up right only. I’m still having to push through this on a daily basis. Do the fact I still haven’t gotten any answers from anybody since 2015. Yes the discomfort is still in my neck as well. I’m now in my late 40’s getting ready to turn 50 September. I don’t think a cane would help me at this point I really don’t. I only think the only logical thing that would is a wheelchair in my case. You can probably see now why I’m wanting that to keep me mobile and not stuck on my couch every day. That’s getting very annoying and old for me. I’ve very much frustrated.at this point as you can see. Have a good Sunday sweetie. Enjoy the two playoff games today. 😃

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