For Those With Teens , Adult Children Who Have Epilepsy, Do You Leave Them Alone At Any Time Or Do They Have Someone With Them At All Times?
@A MyEpilepsyTeam Member , I’m 46 & still live at home with my Mom & stepdad. Growing up, when I would get out of school I would be home by myself for a little while. But my seizures probably weren’t as frequent or as severe as some people’s but back then I had the absence seizures. Now, if my Mom & stepdad go out of town to see my brother & his family & I decide to stay home with our cats, then just to be on the safe side, we have a family friend who either comes over & sits & watches TV while I take a bath or I’ll let him know when I’m about to take a bath & when I get out of the bath. I’ve never had any seizures while taking a bath but it’s all to be safe. So, I would suggest to look at it this way, how frequent & severe are your son’s seizures & try to make a decision from that because if you don’t feel comfortable leaving him alone, then don’t. You might talk to his doctor. Where I live there’s a daycare for those with disabilities but it’s expensive, apparently they charge like $800 dollars a day but they have a little store inside their daycare building & they allow the people who stay there for the day, to work in the little store & maybe that helps those with disabilities learn things. But you could also see if your local Epilepsy Foundation offers anything or knows of a place that offers a housing assistance place in the event he had a seizure. Prayers his seizures calm down. Your friend in Texas, Becky
I agree. My sister, 2 years younger, are caring for our parents and I trying to live independently as well. My goal is to break out of seizures more and become more alone. Sometimes, my parents would on trips and I don't mind being alone. It's a part of life for me and at one point a training point so see what I would do.
@A MyEpilepsyTeam Member
When my parents go out of town. I still don’t even stay home alone. How could I do anything or go anywhere. I’ll stay with my grandma. Your Kansas Colleague, Sean
@A MyEpilepsyTeam Member
That sounds like my mom and I’m in my 40’s
I have proven that no matter how controlled epilepsy is, a mother is always going to be worried about their kids. I went eight years without a seizure and my mom was still as paranoid all that time as the first day she found me blue, not breathing, bloody, and unconscious. Good moms do that.
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