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I'm having more headaches, my mood can flip in a second,my memory is starting to get really bad again and i am up all hours of the night not able to sleep and feeling sick. Could anyone tell me does this mean something?
So my lamotrigine is still not fixed (long story) I am now on 200 mg pills being cut in half moring and night. Seems like it should be fine right? Well my pill splitter is not cutting them in exact… read more
Hope All Have Had A Great Day! Have A Question About Some Meds. I Tend To Write Novels, Understand If You Don't Want To Read It! Lol 🐙💞😝
I went to Swedish Hospital in Seattle at the beginning of the month. I was referred by my neurologist here in Spokane to a Dr. Micheal Doherty. It's for the RNS Implant Surgery. While I was there for just a consult. He prescribed me a new med that the doctors in Spokane are not able to, or just don't want to! Lol. It's called Onfi, or Clobazam I believe. I just call it Onfi. But, my question is....have any of you taken it. And if so, how were the side effects? Because I was only taking 5mg for… read more
Sleep
No matter what I do it feels like I can’t sleep. I take pills, work out , I even work alot of hours. I’m on Lammotrigene. I tend to have more siezures when I’m tired.
L theanine and or gaba will put you right to sleep. They can also act as an antiseizure agent but, some epileptics dont respond to the gaba receptors. L theanine lowers glutamate and raises gaba so… read more
Autism & Epilepsy Brain Surgery
Hi everyone, an important and kind of urgent question for you here please.
I have a good friend who comes to mine and my friends Epilepsy Support group. He has asked me to reach out to see if anyone has experience with Autism and brain surgery for Epilepsy. He has a teenage son with Epilepsy who also has severe Autism. They're looking into surgery, but my friend and his wide do not know how it will go with him being so severely autistic, he can't even cope having blood taken, or cannulas. He… read more
My cousin and my friends. Kid , bot have Autism. Neither one are patient and don’t do well with Dr.’s.
From my experience . Before my brain surgery I had to do many pre tests. I had to do Neuro… read more
Veterans With Epilepsy How Do You Drive To Work?
I was wondering if there were any other veterans on here that have tackled the issue of driving to work. Is there something we can apply for to pay for transportation? Im at a loss for how im going to work. I have about 2 seizures every month.
That very expensive where I live in California. There are no public Transportation in my area. I would need to Uber to it to catch a bus 20 minutes away. I have a paid almost $100 of $$ to be able to… read more
Just Focal Seizures
Hi everyone,
Just wondering if theres anyone out there who has focal seizures ONLY, no other kinds?
I have focal seizures and now starting to have silent or absence seizures. My left side seizes because my right side of my brain is smaller. This diformity has been since birth but I didnt have my… read more
Do You Experience More Seizures During Menstrual Cycle ?
Hello ladies, my medicine has been controlling my seizures until recently (but usually around my menstrual cycle) this happen to anyone else ?
Yes my absences and seizures were/are hormone linked. Now I’m through the Menopause though they’re worse!?!?
Can Someone Explain To Me What An Aura Is When It Comes To Epilepsy, Please 😊
Like Stacy3 said, it's a warning signal you may or may not go into a seizure. The auras I had felt like a severe gas pain in the pit of my stomach and/or an out-of-body experience.
Passwords
Why is it so difficult to remember passwords? I have memory problems with my epilepsy and constantly forget passwords for websites, or even numbers.
It seems like a common problem. I just got a journal for my passwords. My memory has just been unbelievably absent. I am training myself to keep a journal and take the time to record my thoughts… read more
Life Value
Does anyone feel undervalued with their life since they became ill? and how have you got through it?
That would be his loss-does he know who else had or has epilepsy now?
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