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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 166 answers
12377 questions

Does Anyone Get Treated Weird After Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

My wife walks on pins and needles after. I like to get over it

A MyEpilepsyTeam Member

People or certain medical practicing peeps have a long way too go. That is fo sho.

May 3, 2023

Stop Harvesting My Personal Information

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

I have noticed someone is gleaning my personal information to post on here. (I doubt it's a member.) It's mine to share as I choose...no one else's. Please respect my privacy.
By the way, you're not even getting it right.
Have a nice day.

A MyEpilepsyTeam Member

Just seeing this post!

May 4, 2023

When Does Something About Epilepsy Or Condition Become Accepted As Fact To The Greater Medical Level And Then To Doctors?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

It is not fact until all of the steps and years involved on research are completed and publication of the research is thus allowed in a medical journal and thus in the US National Library of Medicine and its equivalents of all other nations who have also verified that the research are fact
Thus, from 1995 onward, the epileptic partial seizures were considered as fact. If you were one of us unlucky to have them before then, the neurologist would tell you that if you are not falling down and… read more

A MyEpilepsyTeam Member

Hi John
I use to read your posts with interest, have learned a lot from them already, thanks
I am afraid I cannot help you cause I have still much to learn about epilepsy in general, but I… read more

April 16, 2023
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Learn more about treatment options for partial seizures Read more >

Do You Have Auras? Are They Always The Same Or Is It Different Each Time?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

I seem to have different ones. Sometimes an overwhelming dizziness, sometimes it seems like there's a veil over one side of my vision.

A MyEpilepsyTeam Member

Mine can sometimes differ, at some times being the tunnel vision, other times being the sense of motion (like you’re on a boat through waves). My vision sometimes just becomes undefined, the edges of… read more

June 18

A Lady Posted That She May Have A Concussion.

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

**GO TO THE EMERGENCY ROOM ASAP.**
Mars, My phone erased my message to you.
I'm no doctor but your description of your symptoms doesn't sound good, especially since you have a history of other concussions.
Don't wait around.
Get someone to take you to the ER. They can do scans, etc.
Please let us know how you're doing. Ok?
Peggy Shore

A MyEpilepsyTeam Member

Blurry vision is common to me!

March 30, 2023

What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

Once noontime arrives, I pretty much know I'm out of the woods. My vulnerability is from the time I wake up until then. It is so embarrassing to have absance after absance in front of the class… read more

October 16

Could Someone With Epilepsy Have A GREAT SEXUAL RELATIONSHIP?

A MyEpilepsyTeam Member asked a question 💭
Perryville, MD
A MyEpilepsyTeam Member

I believe so. If the right person comes around.😊

August 25, 2022

Has Your Memory Gotten Worse Or At Least Memory Recall The Longer You Have Had Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

I would appreciate from those of you on long-term seizure free state or great operations such that you do not take the medication. Likewise, I would like to hear from those who have reached a long-term seizure free state on alternative treatment, and what your memory (memory recall, short-term memory or long-term memory) whatever has been hampered gotten any better or worse.

Finally, the same questions for those of medication too.

And have any of you noticed any time changes to other basic… read more

A MyEpilepsyTeam Member

I did not get out until after 5 AM the next day. After a CAT Scan without Contrast (I am allergic) there was no damage to my head or neck shown, fortunately. I need to carry a paper from MedicAlert to… read more

December 26, 2023
Sponsored Content
Learn more about treatment options for epilepsy Read more >

, Who Here Has Ever Enjoyed An Aura. In Other Words, Has Anyone Ever Experienced An Aura That Bought Forth A Feeling Of Oneness

A MyEpilepsyTeam Member asked a question 💭
New York, NY

I've done research on this question and I've found people who have said that there auras bring feelings of well-being, intense serenity, bliss, and “enhanced self-awareness.” They are associated with the impression of time dilation, and can be described as a mystic experience by some people

A MyEpilepsyTeam Member

Hey Dennis I'm a believer/experiencet and I agree with John, docs don't understand everything about the brain and the miracle of it. Check out the stories of nde on YouTube.

November 9, 2023

Epilepsy Diagnosis

A MyEpilepsyTeam Member asked a question 💭
Maspeth, NY

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

A MyEpilepsyTeam Member

Would've been at 2012 when I got my Gran Mal Seizure starting for the first time

September 2
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