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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Get Treated Weird After Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

My wife walks on pins and needles after. I like to get over it

May 1, 2023
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A MyEpilepsyTeam Member

People or certain medical practicing peeps have a long way too go. That is fo sho.

May 3, 2023
A MyEpilepsyTeam Member

I had it in a ER. They thought I faked it when I didn’t respond right away! My Epileptologist said that ER doctor hasn’t been trained in every detail of medicine!

May 2, 2023
A MyEpilepsyTeam Member

I always get treated strange when someone witnesses me have a seizure. You can tell who your friends are in times like that, however. Your friends will be with you: They will look at you with compassion, kind smiles, maybe they will hang out near you as you are coming out of it. The ones who are NOT friends will look at you differently, as if you just came in from outer space, or perhaps will even have a grin on their faces.

May 1, 2023
A MyEpilepsyTeam Member

Sometimes. The last time I went to the hospital for a seizure, they said it wasn't a real seizure even though my step mother was there during it and clearly saw that it was. The hospital staff said it was an anxiety seizure (I told my epileptologist this and he was concerned about the hospital I went to based off of the information they told me). They explained that an anxiety seizure is like a fake seizure. I've been having seizures for 15 years and not once ever heard of an anxiety seizure, not even from when I volunteered with the people at the Epilepsy Foundation or when I was part of an Epilepsy support group. They barely checked up on me and discharged me when you could clearly tell that I was not recovered from it. I spent the next 3 days under supervision by my biological mother while I recovered. I was not stable enough to walk around the house on my own without the risk of falling and had problems communicating due to how hard I fell and how often and how hard my head was hitting the floor, the door, and the fridge because it happened in my kitchen. Just make sure you surround yourself with people who truly love and care about you and your health after a seizure. People who actually understand your distress. My family calls Epilepsy an invisible disorder, and they're right. Because you don't typically have any physical differences in appearance or ways you act in public, not everyone takes it as serious as it really is.

May 3, 2023
A MyEpilepsyTeam Member

Yes in a bunch of ways. My ex told everyone I was faking epilepsy knowing I wasn't. Later to cause me a huge issue when I stopped breathing. And it took eight minutes for this hospital to get me to breathe. They decided I wasn't faking and not to listen to ex wifes. Then there is the ever present treat me like I might break. Or the I'm not intelligent thing. You name it I've probably had it happen. Or currently am.

May 1, 2023

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