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Does Anyone Else Get Offended When Someone Says Your Faking Seizures When Your Not?
Does anyone else get offended when a neurologist or hospital says your faking seizures when your not?
Np òne is denying that you're having seizures if told pseudo just from a different source. Any EEG during one that shows no change in brain waves detemines if non-epileptic. Still need meds to help… read more
Whos Peri-menapausal And How Are You Coping?
How are us ladies who are going through the peri-menapause symptoms alongside our siezures and meds side effects coping huh? its alot right? can you differentiate between the 3? please feel free to share your experiences, tips and remedies 💜
omg! the heart palpitations are so strange and do cause extra anxiety! I have been getting the hot flashes for about a year now on and off but not really much sweating thankfully. I am so glad that i… read more
Do Any Of Your Meds You Take Have A Few Side Effects Or Many That You Notice?
I've been on my meds, and have a few, but, not nothing abnormal with and am used to, what are your thoughts and such, you don't have to answer the question here If you don't feel like it.
I've taken some medication that I had some side-effects like feeling very tired all the time. I've also had alot of depression when I was growing up with seizures and sometimes today I get depressed.
Many Of Us Mentioned Music. Has Anyone Tried 'soft Piano Relaxing' Music?
I listen to a lot of soft music, it's very relaxing
Does Anyone Have Days When Everything Freaks You Out?
I feel so bad about being scared about the EEG hospital stay. I was so scared when they changed the date, then added two more days and my husband could not be there. My son got me scared about the website because I saw a few emails in my regular emails. By the way , I changed the settings like someone suggested. I just hope whoever sees this can forgive me. I have a funeral to go to tomorrow. An uncle of my husband. I am going to support him and finally help him with… read more
Or you may also have anxiety. Ask your doctor for some anxiety medication.
Is EEG The Wires On My Head Or On My Chest?
I have a hard time remembering and it might not be EEG. It is a 5 day 4 night test in the hospital to help with my seizures.
That’s a long EEG, which they do to see if there are patterns for when they happen to you.
I Try To Remember It Could Be Worse. But Do Anyone Just Get Tired Of Dealing With Family And Friends That Made This Happen To Yourself?
I know it sounds stupid, but I am starting to forget things more things and I am scared. My husband and others make me feel bad sometimes because I tell them things and they say I know that, you told me yesterday.
It doesn't sound stupid. Yes it's easy to get tired of them. Especially if they got everything to say and don't listen.
Travel
Do any of you feel that travel makes your seizures worse? I once had a seizure while on a cruise ship - that was barrels of fun, but I did have the sick bay all to myself. And/or how do you carry your pharmacy of medications with you?
@A MyEpilepsyTeam Member , my seizures still aren’t full controlled . But since my DBS implant/surgery , my seizures have reduced half . Sometimes less than half
Has Anyone Ever Had A Seizure With Their Eyes Open And They Were Trying To Talk To Someone At The Same Time?
This happened to me for the first time that I'm aware of today. Usually my eyes are either closed or roll back and I shake uncontrollably any insight would be helpful.
I know the more I learn about it the more I want to learn about it i my self have epilepsy I just found out that I have epilepsy when I had my first seizure the first part of this year when I came to… read more
Has Anyone Done Eeg At Home If So What Are Some Things I Should Know?? I Have To Do It At The End Of The Month.
You are Very Welcome ♥️ I hope everything goes well with your testing.
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